2023-03-21T10:33:40-05:00 2022-01-31 351178661 BLUE & CO LLC 12800 N MERIDIAN ST STE 400 CARMEL IN 46032 990 2021-02-01 352029321 THE INDIANA CHAPTER OF THE ALS ASSOCIATION INC INDI 3179159888 7202 EAST 87TH STREET SUITE 102 INDIANAPOLIS IN 46256 TRENT MCBRIDE BOARD CHAIR 3179159888 2023-03-12 1 TRENT MCBRIDE 999009999 ANGELA N CRAWFORD CPA P00573197 3178488920 2023-03-12 3 AAL1 IAL1 2021 2023-04-26 12:10:37Z THE ALS ASSOCIATION INDIANA CHAPTER TRENT MCBRIDE 7202 EAST 87TH STREET SUITE 102 INDIANAPOLIS IN 46256 903017 0 X WWW.ALSAINDIANA.ORG X 1997 IN INDIANA CHAPTER OF THE ALS ASSOCIATION (ALSA), A NATIONAL NOT-FOR-PROFIT ORGANIZATION, PROVIDING SERVICES TO PATIENTS WITH AMYOTROPHIC LATERAL SCLEROSIS (ALS) AND THEIR FAMILIES. 11 11 7 250 0 0 765018 549808 0 0 21939 86081 -37885 183824 749072 819713 48956 74121 0 0 282683 315195 0 0 43001 278805 258126 610444 647442 138628 172271 1535331 1575757 193768 37484 1341563 1538273 X TO DISCOVER TREATMENTS AND A CURE FOR ALS, AND TO SERVE, ADVOCATE FOR, AND EMPOWER PEOPLE AFFECTED BY ALS TO LIVE THEIR LIVES TO THE FULLEST. 0 0 194841 74121 ALS CLINICS AND CERTIFIED CENTER SUPPORT: TO SUPPORT THE HIGHEST QUALITY HEALTHCARE FOR PEOPLE WITH ALS, THE ORGANIZATION PARTNERS WITH AND FINANCIALLY SUPPORTS COMMUNITY HEALTHCARE PROVIDERS IN OFFERING ALS MULTIDISCIPLINARY CLINICS. THESE CLINICS ARE EVIDENCE-BASED MODELS THAT PROMOTE COORDINATED CARE FOR PEOPLE WITH ALS. THESE CLINICS ARE HELD AT ONE OF THE ALS ASSOCIATION CERTIFIED CENTERS OF EXCELLENCE AT IU NEUROSCIENCE CENTER, RECOGNIZED ALS CENTER AT RICHARD L. ROUDEBUSH VA MEDICAL CENTER, AS WELL AS THE NEWLY ESTABLISHED ALS CLINIC AT PARKVIEW NEUROSCIENCE CENTER. THE CHAPTER HAS ASSISTED WITH LICENSED SOCIAL WORK STAFFING, TELEHEALTH, NUTRITION CHART, SUPPLIES AND FINICAL COMMITMENT. DURING THE YEAR ENDED JANUARY 31, 2022, THE CHAPTER SUPPORTED OVER 1000 CLINIC APPOINTMENTS FOR FAMILIES WITH ALS AND OVER 200 TELEHEALTH APPOINTMENTS. 264659 EDUCATION & SUPPORT PROGRAMS: STRATEGICALLY BASED IN AND NEAR PATIENT'S HOME COMMUNITIES, CARE SERVICE COORDINATORS WORK DIRECTLY WITH PEOPLE WITH ALS AND THEIR FAMILIES TO HELP THEM NAVIGATE MANAGEMENT OF ALS AS WELL AS ACCESS COMMUNITY RESOURCES. IN FISCAL YEAR END JANUARY 31, 2022 CARE SERVICE COORDINATORS SERVED OVER 500 PATIENTS PROVIDING 3,000 HOURS OF SOCIAL WORK. COORDINATORS ARE OFTEN THE CRUCIAL SUPPORT PEOPLE NEED WITH GUIDANCE ON FINANCE, EMPLOYMENT ISSUES, INSURANCE QUESTIONS, SOCIAL SECURITY DISABILITY, MEDICARE, MEDICAID AND LONG TERM CARE PLANNING. COORDINATORS TRANSITIONED TO VIRTUAL MONTHLY SUPPORT GROUPS ACROSS THE REGION WITH 250 ATTENDEES. CARE SERVICES STAFF ALSO PROVIDED PROFESSIONAL EDUCATION FOR COMMUNITY PARTNERS SUCH AS HOSPICE, HOME HEALTH AND HOME CARE AGENCIES TO INCREASE THEIR KNOWLEDGE OF ALS. THE CHAPTER HAS A VERY EXTENSIVE LENDING PROGRAM. WE RECOGNIZE THE IMPORTANCE OF PROPER EQUIPMENT AND ASSISTIVE DEVICES IN MAINTAINING SAFETY, INDEPENDENCE AND IN MAXIMIZING PATIENT'S FUNCTIONALITY AND MINIMIZING FINANCIAL COST ASSOCIATED WITH ALS. THE EQUIPMENT LOAN CLOSET PROGRAM PROVIDES ACCESS TO THE NEEDED MEDICAL EQUIPMENT EITHER AS A BRIDGE WHILE AWAITING INSURANCE APPROVAL OR TO THOSE PATIENTS WITH NO INSURANCE COVERAGE FOR THE EQUIPMENT BEING REQUESTED. THE SUCCESS OF THIS PROGRAM IS DUE TO THE GENEROSITY OF OUR SUPPORTERS AND VENDORS WHO DONATE EQUIPMENT AND TO THE FUNDS RAISED THROUGH OUR WALK TO DEFEAT ALS PROGRAMS WHICH ALLOW US TO PURCHASE NEW ITEMS, REPAIR/REPLACE EXISTING ITEMS, AND ENSURES PROPER MAINTENANCE TO THE VARIOUS DME ITEMS IN THE LOAN CLOSET. DURING THE YEAR ENDED JANUARY 31, 2022, THE CHAPTER LOANED 170 PIECES OF EQUIPMENT TO 120 PATIENTS. PATIENT FINANCIAL GRANT PROGRAMS SUPPORTED PATIENTS FOR BATHROOM ITEMS, AND MEDICAL COPAYS. THE CHAPTER ALSO FUNDED MEDICAL COPAYMENTS FOR POWER WHEELCHAIRS. 83751 AWARENESS EVENTS: EVENTS SPONSORED BY THE CHAPTER INCLUDE THE WALK TO DEFEAT ALS, BOB KRAVITZ GOLF OUTING, CRUISIN' FOR A CURE CAR SHOW, ALS RESEARCH UPDATE, MAY ALS AWARENESS MONTH, AND MISSION CONNECTED SOCIAL MEDIA. NOVEMBER NATIONAL CAREGIVERS' MONTH ACTIVITIES SERVED AS OPPORTUNITIES TO BRING HOPE AND COMMUNITY TO PEOPLE WITH ALS AND THEIR FAMILIES. BY COMING TOGETHER AT AWARENESS EVENTS, PEOPLE WITH ALS AND THEIR FAMILIES, AS WELL AS THOSE WHO HAVE LOST A LOVED ONE TO ALS, FIND STRENGTH AND SUPPORT WITH ONE ANOTHER. MORE THAN 5,000 PEOPLE PARTICIPATE IN THESE EFFORTS TO RAISE THE PROFILE OF THE CHAPTER AND ENGAGE COMMUNITY AWARENESS OF THE SERVICES AND RESOURCES AVAILABLE FROM THE INDIANA CHAPTER. 20321 OUTREACH & ADVOCACY: AS ONE OF 39 CHAPTERS AFFILIATED WITH THE NATIONAL ALS ASSOCIATION, THE INDIANA CHAPTER PROVIDES ONGOING FINANCIAL SUPPORT FOR THE NATIONAL ALS ASSOCIATION TO SUPPORT FEDERAL PUBLIC POLICY INITIATIVES TO IMPROVE THE LIVES OF FAMILIES LIVING WITH ALS, OUTREACH EFFORTS TO RAISE PUBLIC AWARENESS ABOUT ALS, AS WELL AS GLOBAL RESEARCH WORKING TOWARDS TREATMENTS AND A CURE FOR ALS. PUBLICPOLICY ACCOMPLISHMENTS DURING THE YEAR ENDED JANUARY 31, 2022 INCLUDED VIRTUAL DELEGATION OF PEOPLE WITH ALS TO WASHINGTON D.C. TO ADVOCATE FOR SOCIAL SECURITY AND DISABILITY WAIVER, THE NATIONAL ALS REGISTRY, THE ALS RESEARCH PROGRAM AT THE DEPARTMENT OF DEFENSE, AND PROMOTING FEDERAL SUPPORT FOR ALS RESEARCH. 20321 563572 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 17 0 1 7 1 0 0 0 0 0 0 0 0 0 0 0 0 X 11 11 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 0 0 IN X STACY KYNES CPA 1 SOURCE PARTNERS 8134145389 701 S HOWARD AVE SUITE 203 TAMPA FL 33606 TRENT MCBRIDE PRESIDENT 10.00 X X 0 0 0 MONA EULER VICE CHAIR 2.00 X X 0 0 0 MANUEL ORTIZ SMITH TREASURER 10.00 X X 0 0 0 MOLLY CAIN SECRETARY 2.00 X X 0 0 0 CHRIS CARLISLE DIRECTOR 2.00 X 0 0 0 GEOFF DAVIS DIRECTOR 2.00 X 0 0 0 DEREK FRENCH DIRECTOR 2.00 X 0 0 0 BRETT GLAZE DIRECTOR 2.00 X 0 0 0 LARRY MCQUEARY DIRECTOR 2.00 X 0 0 0 MICHAEL SOVIAK DIRECTOR 2.00 X 0 0 0 JOSH NICHOLSON PAST PRESIDENT 2.00 X 0 0 0 TINA KAETZEL EXECUTIVE DIRECTOR 40.00 X 92100 0 0 92100 0 0 0 0 0 0 0 69516 54827 425465 2500 549808 33611 33611 52470 0 52470 52470 52470 266555 69516 83304 183251 183251 MISCELLANEOUS 900099 573 573 573 819713 0 0 269905 35424 35424 38697 38697 91361 76744 7674 6943 196871 166691 15159 15021 3835 3247 295 293 23128 19582 1781 1765 9424 5611 1200 2613 1733 1733 9334 5558 1190 2586 558 558 36813 27753 4661 4399 20860 13123 2434 5303 37391 31595 2139 3657 5244 4456 552 236 110583 110583 22250 20866 1384 1595 1381 109 105 IN KIND 1677 1677 OTHER EXP 664 584 80 647442 563572 40869 43001 199610 838620 140486 10000 2000 1671 2313 1702 40792 40792 23343 0 658390 1200515 2665 29773 1535331 1575757 19649 35282 2202 174119 0 193768 37484 X 1266563 1463273 75000 75000 1341563 1538273 1535331 1575757 172271 24439 0 X 0 0 1 0 X 578662 876630 659906 765018 549808 3430024 578662 876630 659906 765018 549808 3430024 72618 3357406 21641 22927 25981 21095 33611 125255 183251 183251 302 298 573 1173 3739703 0.89780 0.93900 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED PART II-B, LINE 1: THE ORGANIZATION IS NOT DIRECTLY OR INDIRECTLY INVOLVED IN POLITICAL CAMPAIGN ACTIVITIES. THE EXTENT OF INVOLVEMENT IS TO INFORM AND ADVOCATE FOR ISSUES RELATED TO THE MISSION. AS SUCH, CHAPTER VOLUNTEERS AND STAFF PARTICIPATE IN ACTIVITIES INCLUDING EMAILING, TELEPHONING, AND MEETING WITH MEMBERS OF THE U.S. CONGRESS AS WELL AS STATE REPRESENTATIVES FROM INDIANA. THIS ACTIVITY MAY INCLUDE TESTIFYING AT PUBLIC HEARINGS. THE CHAPTER DOES NOT USE THE SERVICES OF PROFESSIONAL LOBBYISTS OR PUBLIC POLICY FIRMS. 40792 40792 0 0 WALKS 220574 16231 204343 5630 15500 598 198 21591 BOB KRAVITZ GOLF 78997 53285 25712 8341 13671 7167 355 10110 1 36500 36500 143 336071 69516 266555 13971 29171 7765 553 31844 83304 183251 1 MITSUBISHI TANABE PHARMA AMERICA INC 525 WASHINGTON BLVD STE 400 JERSEY CITY NJ 07310 954296598 8500 0 RESEARCH GRANT 1 NUTRITION SUPPLEMENTS 1 402 DURABLE MEDICAL EQUIPMENT 55 21887 MEDICAL CO-PAYS 5 3148 HOME REMODEL/TRANSPORT/SUPPLIES/OTHER 22 9280 CAREGIVERS 4 3980 PART I, LINE 2: THE CHAPTER'S DIRECTOR OF PATIENT SERVICES IS A MEMBER OF THE CLINIC'S MULTI-DISCIPLINARY TEAM AND MONITORS HOW THE FUNDS ARE SPENT. FORM 990, PART VI, SECTION B, LINE 11B AN ELECTRONIC COPY OF THE 990 WAS REVIEWED AND APPROVED BY THE BOARD OF DIRECTORS PRIOR TO FILING. FORM 990, PART VI, SECTION B, LINE 12C THE EXECUTIVE DIRECTOR SENDS TO ALL EMPLOYEES THE CONFLICT OF INTEREST POLICY WHICH MUST BE SIGNED BY THE EMPLOYEE. THE EXECUTIVE DIRECTOR MONITORS THE RETURNS AND, WHEN RECEIVED, PLACES THEM IN THE EMPLOYEE'S PERSONNEL FILE HELD IN THE BOOKKEEPER'S OFFICE. A NEW FORM IS COMPLETED AT THE BEGINNING OF EACH FISCAL YEAR. THE BOARD OF DIRECTORS CHAIR SENDS THE FORM TO ALL DIRECTORS AT THE BEGINNING OF THE YEAR AND RETAINS THE SIGNED FORMS IN THE BOOKKEEPER'S OFFICE. FORM 990, PART VI, SECTION B, LINE 15A THE BOARD OF DIRECTORS APPROVE ALL SALARIES, RAISES, AND DISCRETIONARY BONUSES, IF APPLICABLE, BASED ON PERFORMANCE/OPERATIONS DURING THE FISCALYEAR. FORM 990, PART VI, SECTION C, LINE 19 GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS ARE AVAILABLE TO THE PUBLIC IN THE CHAPTER OFFICE UPON REQUEST.