2023-02-17T14:56:58-08:00 2022-12-31 030483170 CEA Scholtes and Associates 106 Tunbridge Rd Baltimore MD 21212 990 2022-01-01 825023726 ADIRA FOUNDATION ADIR 8774260712 7330 STAPLES MILL ROAD 288 RICHMOND VA 23228 DR CYNTHIA GOMEZ Chair 2023-02-17 true DR CYNTHIA GOMEZ 999009999 CHRIS SCHOLTES CPA P01607734 4103230010 2 AAL1 IAL1 FAL1 2022 2023-03-07 01:45:13Z DR CYNTHIA GOMEZ 7330 STAPLES MILL ROAD 288 RICHMOND VA 23228 190912 false X https://adirafoundation.org X 2018 VA TO INVEST IN BETTER LIVES FOR PEOPLE WITH NEURODEGENERATIVE DISEASES. INITIALLY, ADIRA FOUNDATION ADIRA WILL FOCUS ON FIVE NEURODEGENERATIVE DISEASES THAT ARE HIGHLY COMPLEX AND HAVE MUCH IN COMMON: ALZHEIMER'S DISEASE AND RELATED DEMENTIAS, ALS, HUNTINGTON'S DISEASE, MULTIPLE SCLEROSIS, AND PARKINSON'S DISEASE. X 9 9 9 9 0 1005163 140363 0 69159 15247 35302 1074322 190912 95995 316521 0 829174 744138 0 367069 355914 1108756 1281083 2169415 -206761 -1978503 2118169 46085 59708 15310 2058461 30775 TO INVEST IN BETTER LIVES FOR PEOPLE WITH NEURODEGENERATIVE DISEASES, IN ADIRA'S EARLY YEARS, WE WILL FOCUS PRINCIPALLY, THOUGH NOT EXCLUSIVELY, ON FIVE NEURODEGENERATIVE DISEASES: ALS, ALZHEIMER'S AND RELATED DEMENTIAS, HUNTINGTON'S DISEASE, MULTIPLE SCLEROSIS, AND PARKINSON'S DISEASE. AT ADIRA WE ACCELERATE THE DESIGN AND FUNDING OF BETTER, MORE INTEGRATED HELP FOR PEOPLE WHO NEED IT NOW. WE ASSEMBLE A HANDFUL OF DISEASES THAT STRUGGLE WITH MANY OF THE SAME BIG THINGS. WE TAKE THEM OUT OF ISOLATION WHERE THEY'RE DEFINED NOT BY THEIR DIAGNOSIS BUT BY THEIR STRUGGLE. FROM A BIRD'S-EYE VIEW, WE SEE THE COMMON THEMES AND TRENDS. WE SPEAK WITH PEOPLE GOING THROUGH THIS JOURNEY TO DESIGN BETTER PROGRAMS WITH THEM, NOT JUST FOR THEM. THEN WE FUND THOSE BIGGER, COMMON PROBLEMS WITH WHICH THEY SAY THEY NEED THE MOST HELP. SOME EXAMPLES OF OUR WORK TO DATE FOCUS ON CAREGIVING, NAVIGATION OF DIFFERENT SERVICES, DISABILITY, EQUITY, MEASUREMENTS FOR QUALITY OF LIFE, AND MENTAL HEALTH. false false 1418221 316521 35302 ADIRA FINANCED GRANTS TO QUALIFIED NON-PROFITS TO INVEST IN BETTER LIVES FOR PEOPLE WITH NEURODEGENERATIVE DISEASES, STARTING WITH FIVE COMMUNITIES: ALS, ALZHEIMERS AND RELATED DEMENTIAS, HUNTINGTONS, MULTIPLE SCLEROSIS, AND PARKINSONS. In 2022, we implemented a third round of competitive grantmaking on three key topics: simplifying clinical research, preparing for financial threats, and helping people thrive again. Total grants paid for 2022 were $281,521. We managed this in addition to monitoring our ongoing grant activities from previous years. Finally, we piloted a series of three neurodegenerative disease (ND) congress events bringing those with lived expertise in conversation with career experts to design new grants together. Unfortunately, due to a lack of financing momentum, we were forced to enter dissolution at the end of the 2022. 1418221 true true false false false false false false false false false false false false false false false false false false false false false false false false false true true true false false false false false false false false false false false true false false false false false true 33 0 false 9 true false false false false false false false 0 false false false false false false false X 9 9 false false false false false false false true true false false true true true true true false true true false AK AL AR AZ CA CO CT DC DE FL GA HI IA ID IL IN KS KY LA MA MD ME MI MN MO MS MT NC ND NE NH NJ NM NV NY OH OK OR PA RI SC SD TN TX UT VA VT WA WI WV WY X X X CEA SCHOLTES ASSOCIATES 4103230010 106 TUNBRIDGE ROAD BALTIMORE MD 21212 GREG SMILEY - UNTIL 121622 Founder/CEO 40.00 0.00 X 217878 0 27000 MARILYN SPINNER -UNTIL 10522 Chief Dev. & External Affairs Officer 40.00 0.00 114480 0 26844 DR CYNTHIA GOMEZ Chair 2.00 0.00 X X 0 0 0 ALAN J ABRAMSOM Vice President 2.00 0.00 X X 0 0 0 TODD EVENSON Treasurer 2.00 0.00 X X 0 0 0 Cheryl Sullivan Staveley Secretary 2.00 0.00 X X 0 0 0 LAURA HANEN Director 1.00 0.00 X 0 0 0 ALAN HUTSON Director 1.00 0.00 X 0 0 0 IAN KREMER Director 1.00 0.00 X 0 0 0 ZEN MELESSE Director 1.00 0.00 X 0 0 0 KANDY FERREE Director 1.00 0.00 X 0 0 0 BRUCE PACKETT - UNTIL 1122 Director 1.00 0.00 X 0 0 0 332358 53844 2 false true false 0 140363 140363 0 15247 15247 0 0 0 0 0 0 0 OTHER INCOME 900099 2931 2931 RETURN OF UNUSED GRANT FUNDS 900099 32371 32371 35302 190912 35302 15247 281521 281521 35000 35000 0 0 244878 135421 27140 82317 0 354226 195892 39259 119075 19022 10520 2108 6394 83121 45967 9212 27942 42891 23719 4754 14418 0 90561 90561 74268 74268 0 0 2048 2048 45698 250 40740 4708 82402 3666 4834 73902 8650 240 7992 418 0 0 26578 26578 104286 44138 23144 37004 0 0 0 0 3720 3720 0 BAD DEBT (PLEDGE WRITE OFF) 479749 479749 PARTNERSHIP AGREEMENTS 74003 74003 RETURN OF UNUSED GRANT FUNDS 73405 73405 ADMIN EXPENSES 22892 2 21999 891 20496 14728 5768 2169415 1418221 384125 367069 386254 25892 615954 0 535749 0 13905 11093 0 0 0 0 3799 9062 9487 0 0 553021 0 0 0 38 2118169 46085 59708 15310 59708 15310 X 1262745 30775 795716 2058461 30775 2118169 46085 -1978503 -49183 X false false false X 3899 42420 1005163 140363 1191845 0 0 3899 42420 1005163 140363 1191845 32538 1159307 69159 15247 84406 0 35302 35302 1311553 X 0.00000 RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED true AIBS SPARS 950 Herndon Pky Suite 450 Herndon VA 20170 530220853 501(C)(3) 36803 0 Pervasive Need Grant Discalced Inc 3 Lafayette Ave Brooklyn NY 11217 133577394 501(C)(3) 60000 0 Pervasive Needs Grants Institute for Public Health 1250 Connecticut Ave NW 601 Washington DC 20036 463039129 501(C)(3) 25000 0 Rural Neurodegenerative Support Memory Care Home Solutions 1526 S Big Bend Blvd Saint Louis MO 63117 020641248 501(C)(3) 79753 0 Pervasive Needs Grant University of Pittsburgh 116 Atwood Street Ste 201 Pittsburgh PA 15213 250965591 501(C)(3) 79965 0 School of Nursing competitive 5 0 STIPENDS 60 35000 Grantmaker's Description of How Grants are Used At time of award the grantee organization enters into a grant agreement with Adira Foundation. The agreement includes an approved budget with itemized expenses. Grantees can request a change to the approved budget in writing to Adira Foundation. Grantees submit an estimated to actual expense report at least twice during the course of their project period, one at the mid-point and another final report after the grant has ended. Adira may extend a grant period to allow an organization to further utilize remaining funds, roll remaining funds over to a new phase of a project, or request a return of remaining funds at the end of a project period. These decisions are made on a case-by-case basis in the best interest of the projects goals. X true false false false false false false false false GREG SMILEY - UNTIL 121622 Founder/CEO 217878 27000 244878 COMPUTERS 2022-12-02 20656 COST 471465185 TECH FOR TROOPS 4840 Waller Rd Richmond VA 23230 501(C)(3) COMPUTERS 2022-12-02 6195 COST 264614274 EVERYLIFE FOUNDATION 1012 14TH STREET NW Suite 500 WASHINGTON DC 20005 501(C)(3) PLEDGE WRITE OFF 2022-12-31 479749 FMV RETURN OF UNUSED GRANT FUNDS 2022-12-31 73405 FMV 133127947 BRISTOL MYERS SQUIBB FOUN 430 E 29TH STREET FL NEW NEW YORK NY 10016 501(C)(3) false false false false Sch N, Part III, Additional Information THE REMAINING ASSETS OF THE FOUNDATION WILL BE USED TO PAY OUTSTANDING BILLS AND WHAT IS LEFT WILL BE DONATED TO EVERYLIFE FOUNDATION FOR RARE DISEASES, 26-4614274. THE ORGANIZATION WILL FILE A FINAL RETURN IN 2023. Form 990, Part VI, Section B, Line 11b ADIRA ENGAGES FRACTIONAL CHIEF FINANCIAL OFFICER CFO CONSULTANTS TO SERVE THE FINANCIAL MANAGEMENT FUNCTION, INCLUDING REVIEW OF BUSINESS PRACTICES AND FINANCIAL CONTROLS IN ACCORDANCE WITH GENERALLY ACCEPTED ACCOUNTING PRINCIPLES. ADIRA WILL LOOK TO MAKE THAT JOB FUNCTION PERMANENT AND BROUGHT IN-HOUSE AS OUR NEEDS AND CAPACITY DEMANDS. ORGANIZATION'S PROCESS TO REVIEW FORM 990: THE CFO AND CHIEF EXECUTIVE OFFICER CEO REVIEW AND DISCUSS THE 990. AFTER WHICH THEY PRESENT THE 990 TO THE BOARD FOR THEIR REVIEW BEFORE IT IS FILED WITH THE IRS. Form 990, Part VI, Section B, Line 12c ENFORCEMENT OF CONFLICTS POLICY: ANY POTENTIAL CONFLICT OF INTEREST IS REQUIRED TO BE DISCLOSED. EACH MEMBER OF THE BOARD MUST ANNUALLY DECLARE AND ATTEST TO ANY POTENTIAL CONFLICT OF INTEREST. AT THE ANNUAL MEETING THE BOARD DISCUSSES THOSE ATTESTATIONS AND APPROVES OF HOW TO PROCEED IN RESPONSE, IN ALIGNMENT WITH THE CONFLICT OF INTEREST POLICY. Form 990, Part VI, Section B, Line 15a THE BOARD MEETS ANNUALLY TO DETERMINE THE COMPENSATION AND BENEFITS PACKAGE OF THE ORGANIZATION'S CEO. THE BOARD EVALUATES PERFORMANCE RELATIVE TO ANNUAL TARGETS SET. THE BOARD ALSO FACTORS IN COMPARABILITY DATA, CASH ON HAND, AND CURRENT INDEPENDENT COMPENSATION ANALYSES. THE BOARD THEN APPROVES ANNUAL COMPENSATION FOR THE CEO AND DOCUMENTS CONTEMPORANEOUS SUBSTANTIATION OF THEIR DELIBERATION AND DECISION. Form 990, Part VI, Section B, Line 15b THE BOARD WORKS WITH THE CEO AND CFO ANNUALLY TO DEVELOP AND APPROVE THE BUDGET FOR THE FOLLOWING FISCAL YEAR WHICH INCLUDES A COMPENSATION FOR KEY EMPLOYEES. Form 990, Part VI, Section C, Line 19 ADIRA FOUNDATION MAKES ITS GOVERNING DOCUMENTS AND CONFLICT OF INTEREST POLICY AVAILABLE TO THE PUBLIC THROUGH THE VIRGINIA STATE CORPORATION COMMISSION, OTHER MEDIA, AND IS AVAILABLE UPON REQUEST. FORM 990, PART III, LINE 4A, PROGRAM SERVICE ACCOMPLISHMENTS: Adira Foundation made significant, consequential impact before entering dissolution at the end of 2022. During the short time we were active, we completed 5 special projects, awarded 20 grants, held 3 neurodegenerative disease congress events, assessed fifty quality of life measurement tools, hosted numerous listening and learning events, and issued substantive reports, all culminating in our final ND Congress Report as well as our Blueprint for Action. Both of these reports as well as details on all of our activities can be found on our legacy website: https://adirafoundation.org SINCE ITS FOUNDING, ADIRA FOUNDATION AIMED TO BUILD AND FUND BETTER AND MORE RESPONSIVE SERVICES, CO-DESIGNED FROM THE PATIENT/CAREGIVER POINT-OF-VIEW. WE did that THAT THROUGH MULTIPLE LISTENING AND LEARNING ACTIVITIES, BUT ALSO IN FUNDING NON-PROFITS THROUGHOUT THE UNITED STATES IN BOTH DIRECT AWARDS AND COMPETITIVE GRANTS. FROM $100,000 IN ROUND 1 TO $260,000 IN ROUND 2, ADIRAS 2021 ACTIVE PROGRAM YEAR CONTINUES TO GROW BY INVESTING IN NON-PROFITS. In 2022, we implemented a third round of competitive grantmaking on three key topics: simplifying clinical research, preparing for financial threats, and helping people thrive again. This third round of $281,521 WAS FUNDED IN EARLY 2022. SIMPLY PUT, WE ASKed PEOPLE WHAT THEY STILL NEED BUT ARENT GETTING, AND WE ASKed WHAT BETTER HELP WOULD LOOK LIKE. THEN WE FUNDed THOSE THINGS MOST IMPORTANT TO THEM, AND IN THE WAYS THEY WANT TO SEE IT. WE Took ON THOSE COMMON, CROSS-CUTTING ISSUES THAT APPEAR TOO BIG FOR ANYONE TO OWN, SUCH AS CAREGIVING, MENTAL HEALTH, NAVIGATION OF SERVICES, MAKING CLINICAL RESEARCH EASIER, DISABILITY, LIFE AFTER LEAVING THE WORKFORCE, AND SIMILAR ISSUES. Our aim for the future had been to build Round 4 and other activities by bringing patients and caregivers with lived expertise in congress with those with career expertise to design better help together. We did this through three ND Congress events throughout 2022. Unfortunately, we were forced to close at the end of the year before being able to action a Round 4 of competitive grants. Again, OUR IMPACT REPORTS DETAILING all of these ACTIVITIES CAN BE FOUND ON OUR legacy WEBSITE: HTTPS://ADIRAFOUNDATION.ORG.