2024-10-14T11:05:02-05:00 2024-02-29 873707167 CBIZ MARKS PANETH LLC 685 THIRD AVENUE NEW YORK NY 10017 990 2023-03-01 237191992 TOURETTE ASSOCIATION OF AMERICA INC TOUR 7182242999 42-40 BELL BOULEVARD BAYSIDE NY 11361 SONJA MASON-VIDAL VICE PRESIDENT, FINANCE 7182242999 2024-10-11 1 1 MAGDALENA CZERNIAWSKI P00535099 2125038800 2024-10-11 2023 2024-10-15 13:58:12Z SONJA MASON-VIDAL 42-40 BELL BOULEVARD BAYSIDE NY 11361 8075190 0 7202 X TOURETTE.ORG X 1972 NY TO IDENTIFY THE CAUSE OF, FIND THE CURE FOR AND CONTROL THE EFFECTS OF TOURETTE SYNDROME. 16 16 38 120 0 0 4496697 4466745 171515 138528 141640 486666 74034 -43744 4883886 5048195 699600 972793 0 0 2373504 3192989 0 0 899765 2134780 2438755 5207884 6604537 -323998 -1556342 11157402 10414671 1961975 2262774 9195427 8151897 X TO IDENTIFY THE CAUSE OF, FIND THE CURE FOR, AND CONTROL THE EFFECTS OF TOURETTE SYNDROME. THE TOURETTE ASSOCIATION IS DEDICATED TO MAKING LIFE BETTER FOR ALL PEOPLE AFFECTED BY TOURETTE AND TIC DISORDERS. 0 0 2321043 138528 PUBLIC EDUCATION - PROVIDE EDUCATION AND AWARENESS BY RAISING PUBLIC AWARENESS AND FOSTERING SOCIAL ACCEPTANCE. EDUCATING PROFESSIONALS TO BETTER SERVE THE NEEDS OF CHILDREN, ADULTS AND FAMILIES CHALLENGED BY TOURETTE AND TIC DISORDERS. ADVOCATING FOR PUBLIC POLICIES AND SERVICES THAT PROMOTE POSITIVE SCHOOL, WORK AND SOCIAL ENVIRONMENTS. PROVIDING HELP, HOPE AND A SUPPORTIVE COMMUNITY ACROSS THE NATION. EMPOWERING OUR COMMUNITY TO DEAL WITH THE COMPLEXITIES OF THIS SPECTRUM OF DISORDERS. 1503949 897197 RESEARCH & MEDICAL PROGRAMS - WORKING TO ADVANCE SCIENTIFIC UNDERSTANDING, TREATMENT OPTIONS AND CARE OPTIONS FOR THE DISORDER BY PROVIDING FUNDING FOR RESEARCH INVESTIGATIONS IN THE AREAS OF NEUROSCIENCES, GENETICS, BEHAVIORIAL THERAPY, CLINICAL TRIALS. 999121 75596 CENTERS FOR DISEASE CONTROL (CDC) PARTNERSHIP - THE ASSOCIATION AND CDC WORK TOGETHER TO PROVIDE EXPERT EDUCATION ABOUT TOURETTE SYNDROME TO PHYSICIANS AND ALLIED PROFESSIONAL AND TO ENCOURAGE PHYSICIANS TO APPLY TO THE ASSOCIATIONS ' REFERRAL LISTS. INCLUDES PROGRAMS TO EDUCATE SCHOOLS AND COMMUNITIES ABOUT TOURETTE SYNDROME. 143782 THE TOURETTE SYNDROME BEHAVIOR TRAINING INSTITUTE ( "TS- BTI") WAS CREATED TO EXPAND THE NUMBER OF HEALTHCARE PROFESSIONALS COMPETENTLY TRAINED IN BEHAVIOR THERAPY FOR TOURETTE SYNDROME AND OTHER TIC DISORDERS. PROFESSIONAL EDUCATION - PROVIDES FOR THE EDUCATION AND AWARENESS OF TOURETTE SYNDROME TO MEDICAL PROFESSIONALS, THROUGH AMONG OTHER THINGS, SEMINARS AND DISTRIBUTION OF RESEARCH UPDATES. 143782 4967895 1 1 0 1 0 0 0 0 0 1 1 0 0 0 1 1 1 0 0 0 0 0 0 0 1 0 0 1 0 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 29 0 1 38 1 0 0 0 0 0 1 1 0 0 0 0 0 0 X 16 16 0 0 0 0 0 0 0 1 1 0 1 1 1 1 1 1 1 1 1 0 0 AL AK AZ AR CA CT FL IL LA ME MD MI MA MN MS NH NJ NC ND OH OK OR PA RI SC TN UT VA WA WV WI X SONJA MASON-VIDAL VP SEC & TREAS 7182242999 42-40 BELL BOULEVARD BAYSIDE NY 113612820 ALICE KANE FOURTH VICE CHAIR 2.00 X X 0 0 0 BRUCE D OCHSMAN DIRECTOR 2.00 X 0 0 0 CHERI G DAVID CPA DIRECTOR 2.00 X 0 0 0 CINDY KURTZ DIRECTOR 2.00 X 0 0 0 DANIEL MCGARVEY DIRECTOR 2.00 X 0 0 0 DAVID SCHOENHAAR FIRST VICE CHAIR 2.00 X X 0 0 0 JASMINE TARKOFF SECOND VICE CHAIR 2.00 X X 0 0 0 JEFFREY KRAMER THIRD VICE CHAIR 2.00 X X 0 0 0 JOHN WALKUP MD DIRECTOR 2.00 X 0 0 0 JULIE MOELIS DIRECTOR (OUTGOING) 2.00 X 0 0 0 MONTE REDMAN DIRECTOR 2.00 X 0 0 0 PAUL S DEVORE DIRECTOR 2.00 X 0 0 0 RANDI ZEMSKY DIRECTOR 2.00 X 0 0 0 ROVENA SCHIRLING DIRECTOR 2.00 X 0 0 0 STEPHEN BARRON CHAIR 4.00 X X 0 0 0 SUSAN COUREY PHD DIRECTOR 2.00 X 0 0 0 KARL VALENTINI DIRECTOR 2.00 X 0 0 0 AMANDA TALTY PRESIDENT & CEO 40.00 X 288421 0 16580 DIANA FELNER VICE PRES., PUBLIC POLICY 40.00 X 146014 0 25070 KARON HARRISON VP RESOURCE DEV. AND AFFILIATE SERV. 40.00 X 182811 0 9930 SONJA MASON-VIDAL VP OF FINANCE & ADM. 40.00 X 155533 0 7766 JOSHUA NADEAU VP OF MED.&SCI. RESEARCH (OUTGOING) 40.00 X 116866 0 11532 889645 0 70878 5 0 1 0 0 940526 1443655 2082564 246577 4466745 CONFERENCE INCOME 900099 138528 138528 138528 280265 280265 3011022 2804621 206401 206401 206401 178630 940526 222374 -43744 -43744 5048195 138528 0 442922 972793 972793 909748 586487 165354 157907 1847598 1359098 181206 307294 22180 17398 912 3870 217237 150274 23171 43792 196226 138617 22846 34763 29503 16105 10421 2977 7500 7500 34397 34397 422015 318684 40079 63252 199005 160696 199 38110 411709 293820 15776 102113 121721 91422 11879 18420 82737 41164 29424 12149 217840 171080 7211 39549 455401 376979 24338 54084 11332 6144 3457 1731 60429 33157 24246 3026 MISCELLANEOUS 135161 72895 52617 9649 UNCOLLECTABLE RECEIVABL 84200 84200 CHAPTER SUPPORT 62153 62153 REGISTRATION FEES 53830 47403 1947 4480 49822 44026 3197 2599 6604537 4967895 736877 899765 134967 125327 3096314 2605365 1102926 916497 19725 43958 164955 252556 168185 151809 27708 16376 6196112 6100707 34519 414695 319366 11157402 10414671 407459 445542 863852 822300 5796 18327 331196 539586 158810 353672 278209 1961975 2262774 X 7813479 6993959 1381948 1157938 9195427 8151897 11157402 10414671 -1556342 512812 0 X X 0 1 X 1 1 1 X 3607075 3462232 3971216 4496697 4466745 20003965 3607075 3462232 3971216 4496697 4466745 20003965 1488278 18515687 124391 120737 150792 190767 280265 866952 101125 3185 81614 197637 178630 562191 21433108 604114 0.86390 0.89080 X SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: FUNDRAISING INCOME - 2019 AMOUNT: $ 101,125. 2021 AMOUNT: $ 61,295. 2022 AMOUNT: $ 91,446. 2023 AMOUNT: $ 178,630. MISCELLANEOUS INCOME - 2020 AMOUNT: $ 3,185. 2021 AMOUNT: $ 20,319. 2022 AMOUNT: $ 106,191. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1 1 0 1 91571 0 0 1 134789 0 0 226360 0 PART I-A, LINE 1: TAA ADVOCATES TO ENSURE GOVERNMENT OFFICIALS UNDERSTAND TOURETTE SYNDROME (TS) AND TIC DISORDERS (TD) AND TO ENSURE POLICIES AND REGULATIONS BEING DRAFTED, RELEASED AND FINALIZED OR SIGNED INTO LAW ARE IN THE BEST INTERESTS OF THOSE WITH TS OR TD. WE ALSO ADVOCATE TO ENSURE ADEQUATE GOVERNMENT FUNDING IS PROVIDED FOR THE CDC TOURETTE SYNDROME PUBLIC HEALTH EDUCATION AND RESEARCH PROGRAM AND AT THE NATIONAL INSTITUTES OF HEALTH'S NATIONAL INSTITUTE OF NEUROLOGICAL DISORDERS AND STROKE AND THE NATIONAL INSTITUTE OF MENTAL HEALTH. 474000 106458 7166 7166 580458 474000 4795 4795 474000 334000 140000 5146 5146 474000 334000 5518 5518 334000 334000 6521 6521 334000 1.00000 1 0 168185 151809 16376 16376 OPERATING LEASE LIABILITY 255279 FINANCING LEASE LIABILITY 22930 278209 X 6019756 512812 530948 -37802 1005958 5013798 34397 34397 5048195 7063286 530948 530948 6532338 34397 37802 72199 6604537 PART V, LINE 4: THE INTENDED USE OF THE ORGANIZATION'S ENDOWMENT FUNDS IS TO SUPPORT THE WORK OF THE PUBLIC EDUCATION (INFORMATION & REFERRAL SERVICE) PROGRAM. PART X, LINE 2: THE ASSOCIATION BELIEVES IT HAS NO UNCERTAIN TAX POSITIONS AS OF FEBRUARY 29, 2024 AND FEBRUARY 28, 2023 IN ACCORDANCE WITH ACCOUNTING STANDARDS CODIFICATION ("ASC") TOPIC 740, WHICH PROVIDES STANDARDS FOR ESTABLISHING AND CLASSIFYING ANY TAX PROVISIONS FOR UNCERTAIN TAX POSITIONS. PART XI, LINE 2D - OTHER ADJUSTMENTS: INDIRECT FUNDRAISING EXPENSE -37,802. PART XII, LINE 4B - OTHER ADJUSTMENTS: INDIRECT FUNDRAISING EXPENSE 37,802. GALA 872889 772064 100825 67850 4050 47610 GOLF-LI 246267 168462 77805 11067 72420 10858 8519 1119156 940526 178630 11067 140270 10858 4050 56129 222374 -43744 1 CINCINATTI CHILDRENS HOSPITAL MEDICAL CENTER 3333 BURNET AVE CINCINNATI OH 45229 310833936 501(C)(3) 150000 0 RESEARCH WAKE FOREST UNIVERSITY HEALTH SCIENCES 475 VINE ST WINSTON NC 27101 223849199 501(C)(3) 147197 0 RESEARCH VANDERBILT UNIVERSITY MEDICAL CENTER 1161 21ST AVE S D3300 NASHVILLE TN 37232 352528741 501(C)(3) 150000 0 RESEARCH REGENTS UNIVERSITY OF MINNESOTA 600 MCNAMARA ALUMNI CENTER SE MINNEAPOLIS MN 55455 416007513 501(C)(3) 150000 0 RESEARCH REGENTS OF THE UNIVERSITY OF CALIFORNIA LA 1111 FRANKLIN STREET 8TH FLOOR OAKLAND CA 946075200 956006143 501(C)(3) 150000 0 RESEARCH YALE UNIVERSITY 55 COLLEGE ST NEW HAVEN CT 06520 501(C)(3) 150000 0 RESEARCH 6 PART I, LINE 2: THE ASSOCIATION MUST RECEIVE A FINAL PROGRESS REPORT DESCRIBING RESEARCH AND OUTCOMES AS WELL AS HOW FUNDS HAVE BEEN USED. ADVISORY BOARDS REVIEW AND APPROVE BEFORE FINAL PAYMENT IS MADE. X X X X 0 0 0 0 0 0 0 0 0 AMANDA TALTY PRESIDENT & CEO 287881 0 0 0 540 0 8980 0 7600 0 305001 0 0 0 KARON HARRISON VP RESOURCE DEV. AND AFFILIATE SERV. 182496 0 0 0 315 0 5642 0 4288 0 192741 0 0 0 DIANA FELNER VICE PRES., PUBLIC POLICY 145531 0 0 0 483 0 4571 0 20499 0 171084 0 0 0 SONJA MASON-VIDAL VP OF FINANCE & ADM. 155218 0 0 0 315 0 4792 0 2974 0 163299 0 0 0 X 6 246577 STOCK DONATIONS 0 0 0 PART I, COLUMN (B): THE NUMBER IN COLUMN B REPRESENTS THE NUMBER OF CONTRIBUTIONS. FORM 990, PART VI, SECTION B, LINE 11B THE FORM 990 IS PREPARED BY AN INDEPENDENT ACCOUNTING FIRM. THE FORM 990 IS PROVIDED TO EACH BOARD MEMBER FOR THEIR REVIEW. THE FORM 990 IS ONLY FILED AFTER EACH BOARD MEMBER FORMALLY APPROVES THE 990. FORM 990, PART VI, SECTION B, LINE 12C THE CONFLICT OF INTEREST POLICY IS SIGNED ANNUALLY BY BOARD MEMBERS AND MANAGEMENT. FORM 990, PART VI, SECTION B, LINE 15A THERE IS A PERSONNEL/COMPENSATION COMMITTEE. THE CHAIR ASSIGNS THE MEMBERS TO DO RESEARCH AND COME UP WITH RECOMMENDATIONS TO THE COMMITTEE FOR THE OFFICERS. FORM 990, PART VI, SECTION C, LINE 19 ALL DOCUMENTS ARE AVAILABLE UPON REQUEST. FORM 990, PART XII, LINE 2C: THE PROCESS OF OVERSEEING THE AUDIT AND SELECTION OF AN INDEPENDENT ACCOUNTANT HAS NOT CHANGED FROM THE PRIOR YEAR.