2024-08-30T09:29:53-04:00 2023-12-31 341897853 CRUM & COMPANY 1640 AKRON PENINSULA RD STE 102 AKRON OH 44313 990 2023-01-01 650404623 CREUTZFELDT-JAKOB DISEASE FOUNDATION INC CREU 8006591991 3634 WEST MARKET STREET SUITE 110 AKRON OH 44333 DEBORAH YOBS PRESIDENT/EXEC. DIR 2127195900 2024-08-01 true false KEVIN K CRUM P00255436 3308671222 2024-08-07 2023 2024-08-08 14:25:15Z DEBORAH YOBS 3634 WEST MARKET STREET SUITE 110 AKRON OH 44333 5318229 false X WWW.CJDFOUNDATION.ORG X 1993 FL TO SUPPORT FAMILIES AFFECTED BY PRION DISEASE, RAISE AWARENESS, AND SUPPORT MEDICAL EDUCATION AND RESEARCH. 18 18 6 350 0 2735803 2770443 41100 37113 84302 89001 47635 2861917 2943480 651433 718205 0 370895 396748 0 84293 252114 426645 1274442 1541598 1587475 1401882 6412924 8137536 66562 127957 6346362 8009579 X CREUTZFELDT-JAKOB DISEASE (CJD) IS A RARE, RAPIDLY PROGRESSIVE NEURODEGENERATIVE DISEASE, ONE OF SEVERAL PRION DISEASES CAUSED BY PRION PROTEINS THAT MISFOLD IN THE BRAIN. THERE IS NO TREATMENT OR CURE AND THE DISEASE IS INVARIABLY FATAL. THE MISSION OF THE CREUTZFELDT-JAKOB DISEASE FOUNDATION IS TO SUPPORT FAMILIES AFFECTED BY PRION DISEASE, RAISE AWARENESS, SUPPORT MEDICAL EDUCATION, AND FUND RESEARCH. WE CARRY OUT THIS MISSION THROUGH: -FAMILY SUPPORT INCLUDING A 7-DAY HELPLINE, REFERRALS, SUPPORT GROUPS, AND TELECONFERENCE SPEAKER SERIES -EDUCATION AND INFORMATION FOR FAMILIES, CAREGIVERS, MEDICAL PROFESSIONALS, FUNERAL PROFESSIONALS, AND INFECTION CONTROL SPECIALISTS -ADVOCACY WITH SENATORS AND PUBLIC POLICY MAKERS -ANNUAL FAMILY CONFERENCE THAT BRINGS TOGETHER AFFECTED FAMILIES AND PRION DISEASE EXPERTS -FAMILY WORKSHOPS HELD AROUND THE COUNTRY -COLLABORATION WITH SCIENTISTS, CLINICIANS, MEDICAL CENTERS, HEALTH AUTHORITIES, PROFESSIONAL ORGANIZATIONS, AND INTERNATIONAL PATIENT AS false false 469079 THE CJD FOUNDATION PROVIDES MANY FAMILY SUPPORT PROGRAMS TO ASSIST OUR NATIONWIDE CONSTITUENTS, INCLUDING: HELPLINE SUPPORT, FAMILY CONFERENCE, QUESTIONNAIRE, FAMILY WORKSHOPS, TELECONFERENCE SUPPORT GROUPS, SPEAKER SERIES, BEREAVEMENT SUPPORT GROUPS, CAREGIVER SUPPORT GROUPS, AND SUPPORT AND/OR REFERRALS TO THE TELENEUROLOGY ASSESSMENT PROGRAM FOR CJD (TAPCJD). THE CJD FOUNDATION PROVIDES FUNDING AND REFERRALS FOR TAPCJD AND OFFERS GUIDANCE, EDUCATION, AND SUPPORT TO FAMILIES AFFECTED BY PRION DISEASE, WHILE COLLECTING NATURAL HISTORY DATA THAT CAN BE USED FOR A VARIETY OF RESEARCH PURPOSES. HELPLINE SUPPORT: THE CJD FOUNDATION RESPONDED TO 2,200 CALLS AND EMAILS IN 2023, PROVIDING INFORMATION AND REFERRALS AND RESPONDING TO QUESTIONS AND CONCERNS FROM FAMILY MEMBERS, MEDICAL PROFESSIONALS, FUNERAL DIRECTORS, AND INFECTION CONTROL SPECIALISTS. WE SENT CAREGIVING BINDERS TO MORE THAN 158 FAMILIES AND HOSPICE PROVIDERS. AT OUR 2023 CJD FOUNDATION FAMILY CONFERENCE, A TOTAL OF 150 FAMILY MEMBERS, PRION DISEASE EXPERTS, AND PROFESSIONALS ATTENDED. CONFERENCE SESSIONS INCLUDED AN UPDATE FROM THE CENTERS FOR DISEASE CONTROL AND PREVENTION, RESEARCH UPDATES, AND INFORMATION ON SURVEILLANCE, TREATMENT, AND EARLY DIAGNOSIS OF CJD. SUPPORT GROUPS, WEBINARS AND SPEAKER SERIES: WE HOSTED 36 TELECONFERENCE SUPPORT GROUPS IN 2023. THESE CALLS ALLOW CONSTITUENTS WHO CANNOT ATTEND IN-PERSON EVENTS TO ACCESS AN EXPERT AND ADDRESS THEIR QUESTIONS AND CONCERNS. INTERVIEWS WITH PRION DISEASE EXPERTS WERE RECORDED AND POSTED TO THE CJD FOUNDATION WEBSITE. 776486 718205 IN 2023, THE CJD FOUNDATION AWARDED 718,205 IN GRANTS TO 9 RESEARCHERS SELECTED BY OUR SCIENTIFIC ADVISORY COMMITTEE, WHICH COMPRISES INTERNATIONAL PRION DISEASE EXPERTS. 45 RESEARCHERS WORLDWIDE APPLIED. GRANT RECIPIENTS PRESENT THEIR RESEARCH AT THE CJD FOUNDATION'S ANNUAL FAMILY CONFERENCE. THE CJD FOUNDATION HAS AWARDED MORE THAN 86 RESEARCH GRANTS SINCE 2006, FUNDING A NUMBER OF GROUNDBREAKING PROJECTS THAT HAVE LED TO IMPORTANT NEW DISCOVERIES. FUNDING COMES FROM FAMILY MEMORIAL RESEARCH GRANTS AND FROM THE FUNDRAISING ACTIVITIES OF THE CJD FOUNDATION. 42541 THE CJD FOUNDATION HOSTS GRANT ROUND PRESENTATION, INFECTION CONTROL SEMINARS, AND FUNERAL EDUCATION AROUND THE COUNTRY, AT NO CHARGE. OUR MEDICAL EDUCATION PROGRAMS ARE INSTRUCTED BY PRION DISEASE EXPERTS. IN 2023, WE PROVIDED MEDICAL EDUCATION: MEDICAL EDUCATION NEUROLOGY GRAND ROUNDS WERE HELD IN: -TEXAS AT DSHS, WHICH INCLUDES STAFF FROM DSHS, HEALTH AND HUMAN SERVICES COMMISSION, LOCAL HEALTH DEPARTMENTS, LOCAL MENTAL HEALTH CENTERS, HOSPITALS, INSTITUTIONS OF HIGHER EDUCATION, AND OTHERS THROUGHOUT TEXAS. -IMED/SALT LAKE VALLEY NEUROLOGY DEPARTMENT -BAYSTATE UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL -CAPE COD FALMOUTH HOSPITAL IN FALMOUTH, MA. FUNERAL EDUCATION PRESENATIONS WERE HELD IN: -INDIANAPOLIS, INDIANA WE ALSO RESPONDED TO REQUESTS FOR INFORMATION FROM 60 MEDICAL PROFESSIONALS VIA OUR HELPLINE, AND MADE INFORMATION AVAILABLE TO MEDICAL, INFECTIOUS DISEASE, HOSPICE AND GENETIC COUNSELING PROFESSIONALS THROUGH OUR WEBSITE, EDUCATIONAL BINDERS, AND ANNUAL CONFERENCE WHICH IS RECORDED AND POSTED ON OUR WEBSITE. 45929 ADVOCACY WITH POLITICAL REPRESENTATIVES AND PUBLIC POLICY MAKERS. 45929 1334035 true true false true false false false false false false true false false false false true true false false false true true false false true false false true false false false false false false false false false false false false false false false false false false false true 6 0 6 true false false false false false false false false false false false false X 18 18 true false false false false false false true true false false true true true true true true true false false OH FL NY CT CA IL MA MD PA WI WV CO DE KS NJ OR VA WA X X DEBORAH R YOBS 8006591991 3634 W MARKET STREET SUITE 110 AKRON OH 44333 DEBORAH YOBS PRESIDENT/EX 40.00 X 111457 0 0 BRIAN APPLEBY BOARD MEMBER 2.00 X 0 0 0 TREVOR BAIERL BOARD MEMBER 2.00 X 0 0 0 PAMELA FEAR BOARD MEMBER 2.00 X 0 0 0 LAVONNE HALL BOARD MEMBER 2.00 X 0 0 0 CLARENCE HUNTER BOARD MEMBER 2.00 X 0 0 0 AMANDA BAXLEY KALINSKY BOARD MEMBER 2.00 X 0 0 0 JANINE KOCK BOARD MEMBER 2.00 X 0 0 0 JAY LEVY BOARD MEMBER 2.00 X 0 0 0 MAYRA LICHTER CHAIRMAN, RE 2.00 X X 0 0 0 PATRICIA MCGILL TREASURER 2.00 X X 0 0 0 KRISTEN MCGINNIS BOARD MEMBER 2.00 X 0 0 0 BREANDA MEANEY BOARD MEMBER 2.00 X 0 0 0 DAVE MORRIS BOARD MEMBER 2.00 X 0 0 0 FRANK MYERS BOARD MEMBER 2.00 X 0 0 0 MOLLY NOCERINO BOARD MEMBER 2.00 X 0 0 0 JOE POHL BOARD MEMBER 2.00 X 0 0 0 TIM SCHWISTER SECRETARY 2.00 X X 0 0 0 DEANA SIMPSON BOARD MEMBER 2.00 X 0 0 0 MARIA THACKER-GOETHE BOARD MEMBER 2.00 X 0 0 0 MICHAEL VITANZA BOARD MEMBER 2.00 X 0 0 0 JEFFREY YAFFA BOARD MEMBER 2.00 X 0 0 0 STUART YAFFA VICE CHAIR 2.00 X X 0 0 0 111457 1 false false false 636608 74890 2058945 2002 2770443 CONFERENCE INCOME 541900 41100 41100 41100 245716 245716 2149816 2311230 -161414 -161414 -161414 100514 636608 63519 36995 36995 MISCELLANEOUS 541900 10640 10640 10640 2943480 41100 131937 350000 350000 368205 368205 111457 88387 13633 9437 285291 226240 34896 24155 17594 17594 57871 38287 8082 11502 19385 6639 11399 1347 22663 18099 2632 1932 194 194 10211 10211 7099 7099 FAMILY CONFERENCE 184883 184883 TELENEUROLOGY STUDY 28000 28000 PROGRAM EXPENSE 21810 15302 6508 DONATION COLLECTION FEES 13689 2186 11503 43246 7807 17530 17909 1541598 1334035 123270 84293 439 251 323687 442999 62062 35054 14888 20067 7967 7583 29591 18621 76840 38771 59471 38069 5913530 7531936 41667 1289 1289 6412924 8137536 13417 18694 77235 53145 32028 66562 127957 X 5123295 6016665 1223067 1992914 6346362 8009579 6412924 8137536 X 1401882 261335 X false true X true false X 1552666 1732905 2482682 2735803 2770443 11274499 1552666 1732905 2482682 2735803 2770443 11274499 916852 10357647 16398 22028 37997 83547 245716 405686 41225 165 10270 88001 46635 186296 11866481 135341 0.87280 0.96540 X PART II, LINE 10 VARIOUS 0 RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1795686 1795686 239784 59946 179351 186581 205311 239784 811027 1216541 21013 19559 40572 44838 46645 51328 59946 202757 304136 45513 38771 6742 31327 31327 38069 X 3638258 261335 369924 63519 694778 2943480 2943480 1975041 369924 63519 433443 1541598 1541598 SCHEDULE D, PAGE 3, PART X THE PREPARATION OF FINANCIAL STATEMENTS IN CONFORMITY WITH ACCOUNTING PRINCIPLES GENERALLY ACCEPTED IN THE UNITED STATES OF AMERICA REQUIRES THE FOUNDATION TO REPORT INFORMATION REGARDING ITS EXPOSURE TO VARIOUS TAX POSITIONS TAKEN BY THE FOUNDATION. THE FOUNDATION HAS DETERMINED WHETHER ANY TAX POSITIONS HAVE MET THE RECOGNITION THRESHOLD AND HAVE MEASURED THE FOUNDATION'S EXPOSURE TO THOSE TAX POSITIONS. MANAGEMENT BELIEVES THAT THE FOUNDATION HAS ADEQUATELY ADDRESSED ALL RELEVANT TAX POSITIONS AND THAT THERE ARE NO UNRECORDED TAX LIABILITIES. FEDERAL AND STATE TAX AUTHORITIES GENERALLY HAVE THE RIGHT TO EXAMINE AND AUDIT THE PREVIOUS THREE YEARS OF TAX RETURNS FILED. ANY INTEREST OR PENALTIES ASSESSED TO THE FOUNDATION, OF WHICH THERE WERE NONE, ARE RECORDED IN ADMINISTRATIVE EXPENSES. SCHEDULE D, PAGE 4, PART XI, LINE 2D STRIDES FOR CJD EXPENSE 63,519 SCHEDULE D, PAGE 4, PART XII, LINE 2D STRIDES FOR CJD EXPENSE 63,519 true ITALY GRANTS TO RECIPIENTS 50000 CANADA GRANTS TO RECIPIENTS 50000 AUSTRALIA GRANTS TO RECIPIENTS 77235 UNITED KINGDOM GRANTS TO RECIPIENTS 190970 368205 368205 CJD RESEARCH 50000 WIRE TRANSFER CJD RESEARCH 50000 WIRE TRANSFER CJD RESEARCH 77235 WIRE TRANSFER CJD RESEARCH 190970 WIRE TRANSFER false false false false false false SCHEDULE F, PAGE 1, PART I, LINE 2 THE ORGANIZATION AWARDS GRANTS BASED ON PROPOSED RESEARCH BUDGETS AND MONITORS THE STATUS OF THE RESEARCH THROUGH VARIOUS MEANS AS WELL AS UPDATES AND WRITTEN REPORTS ON PROJECTS PROVIDED AT THE FAMILY CONFERENCE. SCHEDULE F, PAGE 1, PART I, LINE 3 ITALY 50,000 0 CANADA 50,000 0 AUSTRALIA 77,235 0 UNITED KINGDOM 190,970 0 STRIDES FOR CJD 657830 557316 100514 63519 657830 557316 100514 63519 63519 36995 true CASE WESTERN RESERVE 10900 EUCLID AVENUE CLEVELAND OH 44106 341018922 501C3 150000 RESEARCH CREIGHTON UNIVERSITY 2500 CALIFORNIA PLZ OMAHA NE 68178 470376583 501C3 100000 RESEARCH BOSTON UNIVERSITY 72 E CONCORD STREET BOSTON MA 02118 042103547 501C3 100000 RESEARCH SCHEDULE I, PAGE 1, PART I, LINE 2 THE ORGANIZATION AWARDS GRANTS BASED ON PROPOSED RESEARCH BUDGETS AND MONITORS THE STATUS OF THE RESEARCH THROUGH VARIOUS MEANS AS WELL AS UPDATES AND WRITTEN REPORTS ON PROJECTS PROVIDED AT THE FAMILY CONFERENCE. FORM 990 - ORGANIZATION'S MISSION CREUTZFELDT-JAKOB DISEASE (CJD) IS A RARE, RAPIDLY PROGRESSIVE NEURODEGENERATIVE DISEASE, ONE OF SEVERAL PRION DISEASES CAUSED BY PRION PROTEINS THAT MISFOLD IN THE BRAIN. THERE IS NO TREATMENT OR CURE AND THE DISEASE IS INVARIABLY FATAL. THE MISSION OF THE CREUTZFELDT-JAKOB DISEASE FOUNDATION IS TO SUPPORT FAMILIES AFFECTED BY PRION DISEASE, RAISE AWARENESS, SUPPORT MEDICAL EDUCATION, AND FUND RESEARCH. WE CARRY OUT THIS MISSION THROUGH: -FAMILY SUPPORT INCLUDING A 7-DAY HELPLINE, REFERRALS, SUPPORT GROUPS, AND TELECONFERENCE SPEAKER SERIES -EDUCATION AND INFORMATION FOR FAMILIES, CAREGIVERS, MEDICAL PROFESSIONALS, FUNERAL PROFESSIONALS, AND INFECTION CONTROL SPECIALISTS -ADVOCACY WITH SENATORS AND PUBLIC POLICY MAKERS -ANNUAL FAMILY CONFERENCE THAT BRINGS TOGETHER AFFECTED FAMILIES AND PRION DISEASE EXPERTS -FAMILY WORKSHOPS HELD AROUND THE COUNTRY -COLLABORATION WITH SCIENTISTS, CLINICIANS, MEDICAL CENTERS, HEALTH AUTHORITIES, PROFESSIONAL ORGANIZATIONS, AND INTERNATIONAL PATIENT ASSOCIATIONS -COMMUNICATION OF CURRENT RESEARCH AND FOUNDATION ACTIVITIES VIA ANNUAL CONFERENCE, WEBSITE, SOCIAL MEDIA, EMAILS, AND FAMILY TELECONFERENCES -RESEARCH GRANT PROGRAM, WHICH INCLUDES NATIONAL AND INTERNATIONAL AWARDEES SELECTED BY OUR SCIENTIFIC ADVISORY COMMITTEE FORM 990, PAGE 1, PART I, LINE 6 THE CJD FOUNDATION'S VOLUNTEERS INCLUDE THOSE WHO HAVE HAD A LOVED ONE AFFECTED, OR WHO UNDERSTAND THE IMPACT OF PRION DISEASE. THEY ARE PASSIONATE ABOUT OUR MISSION AND WANT TO RAISE AWARENESS, EDUCATE MEDICAL PROFESSIONALS AND THE PUBLIC, AND SUPPORT RESEARCH FOR A CURE. VOLUNTEER ROLES INCLUDE ASSISTING WITH OUR HELPLINE, ADVOCACY, MEDICAL EDUCATION, AND FAMILY SUPPORT PROGRAMS AND PEER COUNSELING THROUGH SUPPORT GROUPS. SOME VOLUNTEER THEIR SKILLS IN MARKETING, WEB DESIGN, PUBLIC RELATIONS, LEGAL, AND FINANCIAL AREAS. OTHERS REVIEW RESEARCH GRANT APPLICATIONS OR ASSIST WITH OUR FAMILY CONFERENCE, FAMILY WORKSHOPS, OR FUNDRAISING/AWARENESS- RAISING EVENTS. IN TOTAL, 350 CONTRIBUTED OVER 6,500 HOURS. WITHOUT THE EFFORTS OF THESE VOLUNTEERS, WE COULD NOT HAVE SERVED OUR COMMUNITY WITH THE PROGRAMS WE OFFER. FORM 990, PAGE 2, PART III, LINE 4A THE CJD FOUNDATION PROVIDES MANY FAMILY SUPPORT PROGRAMS TO ASSIST OUR NATIONWIDE CONSTITUENTS, INCLUDING: HELPLINE SUPPORT, FAMILY CONFERENCE, QUESTIONNAIRE, FAMILY WORKSHOPS, TELECONFERENCE SUPPORT GROUPS, SPEAKER SERIES, BEREAVEMENT SUPPORT GROUPS, CAREGIVER SUPPORT GROUPS, AND SUPPORT AND/OR REFERRALS TO THE TELENEUROLOGY ASSESSMENT PROGRAM FOR CJD (TAPCJD). THE CJD FOUNDATION PROVIDES FUNDING AND REFERRALS FOR TAPCJD AND OFFERS GUIDANCE, EDUCATION, AND SUPPORT TO FAMILIES AFFECTED BY PRION DISEASE, WHILE COLLECTING NATURAL HISTORY DATA THAT CAN BE USED FOR A VARIETY OF RESEARCH PURPOSES. HELPLINE SUPPORT: THE CJD FOUNDATION RESPONDED TO 2,200 CALLS AND EMAILS IN 2023, PROVIDING INFORMATION AND REFERRALS AND RESPONDING TO QUESTIONS AND CONCERNS FROM FAMILY MEMBERS, MEDICAL PROFESSIONALS, FUNERAL DIRECTORS, AND INFECTION CONTROL SPECIALISTS. WE SENT CAREGIVING BINDERS TO MORE THAN 158 FAMILIES AND HOSPICE PROVIDERS. AT OUR 2023 CJD FOUNDATION FAMILY CONFERENCE, A TOTAL OF 150 FAMILY MEMBERS, PRION DISEASE EXPERTS, AND PROFESSIONALS ATTENDED. CONFERENCE SESSIONS INCLUDED AN UPDATE FROM THE CENTERS FOR DISEASE CONTROL AND PREVENTION, RESEARCH UPDATES, AND INFORMATION ON SURVEILLANCE, TREATMENT, AND EARLY DIAGNOSIS OF CJD. SUPPORT GROUPS, WEBINARS AND SPEAKER SERIES: WE HOSTED 36 TELECONFERENCE SUPPORT GROUPS IN 2023. THESE CALLS ALLOW CONSTITUENTS WHO CANNOT ATTEND IN-PERSON EVENTS TO ACCESS AN EXPERT AND ADDRESS THEIR QUESTIONS AND CONCERNS. INTERVIEWS WITH PRION DISEASE EXPERTS WERE RECORDED AND POSTED TO THE CJD FOUNDATION WEBSITE. FORM 990, PAGE 2, PART III, LINE 4C THE CJD FOUNDATION HOSTS GRANT ROUND PRESENTATION, INFECTION CONTROL SEMINARS, AND FUNERAL EDUCATION AROUND THE COUNTRY, AT NO CHARGE. OUR MEDICAL EDUCATION PROGRAMS ARE INSTRUCTED BY PRION DISEASE EXPERTS. IN 2023, WE PROVIDED MEDICAL EDUCATION: MEDICAL EDUCATION NEUROLOGY GRAND ROUNDS WERE HELD IN: -TEXAS AT DSHS, WHICH INCLUDES STAFF FROM DSHS, HEALTH AND HUMAN SERVICES COMMISSION, LOCAL HEALTH DEPARTMENTS, LOCAL MENTAL HEALTH CENTERS, HOSPITALS, INSTITUTIONS OF HIGHER EDUCATION, AND OTHERS THROUGHOUT TEXAS. -IMED/SALT LAKE VALLEY NEUROLOGY DEPARTMENT -BAYSTATE UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL -CAPE COD FALMOUTH HOSPITAL IN FALMOUTH, MA. FUNERAL EDUCATION PRESENATIONS WERE HELD IN: -INDIANAPOLIS, INDIANA WE ALSO RESPONDED TO REQUESTS FOR INFORMATION FROM 60 MEDICAL PROFESSIONALS VIA OUR HELPLINE, AND MADE INFORMATION AVAILABLE TO MEDICAL, INFECTIOUS DISEASE, HOSPICE AND GENETIC COUNSELING PROFESSIONALS THROUGH OUR WEBSITE, EDUCATIONAL BINDERS, AND ANNUAL CONFERENCE WHICH IS RECORDED AND POSTED ON OUR WEBSITE. FORM 990, PAGE 2, PART III, LINE 4D ADVOCACY WITH POLITICAL REPRESENTATIVES AND PUBLIC POLICY MAKERS. FORM 990, PAGE 6, PART VI, LINE 2 STUART YAFFA JEFFREY YAFFA VICE CHAIR BOARD MEMBER FAMILY FORM 990, PAGE 6, PART VI, LINE 11B THE CREUTZFELDT-JAKOB DISEASE FOUNDATION RECEIVES A COPY OF FORM 990 TO REVIEW BEFORE THE RETURN IS FILED. FORM 990 IS REVIEWED BY THE PRESIDENT AND BOARD OF DIRECTORS FOR REVIEW OF ACCURACY AND COMPLETENESS. FORM 990, PAGE 6, PART VI, LINE 12C THE CONFLICT OF INTEREST POLICY IS ENFORCED BY THE BOARD AND BOARD MEMBERS WHO ARE REQUIRED TO DISCLOSE KNOWN CONFLICTS. FORM 990, PAGE 6, PART VI, LINE 15A THE ORGANIZATION RESEARCHED AND COMPARED THE SALARY OF OTHER CEOS WORKING FOR OTHER NON-PROFIT ORGANIZATIONS OF ABOUT THE SAME SIZE. ONCE A FAIR AND COMPARABLE COMPENSATION WAS DETERMINED THE ORGANIZATION PRESENTED THE SALARY TO THE EXECUTIVE BOARD AND THE FULL BOARD FOR APPROVAL. THE CEO WAS NOT PRESENT DURING THE VOTE ON COMPENSATION. FORM 990, PAGE 6, PART VI, LINE 17 KANSAS, NEW JERSEY, OREGON, VIRGINIA, WASHINGTON FORM 990, PAGE 6, PART VI, LINE 19 THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS AND FINANCIAL STATEMENTS AVAILABLE UPON REQUEST. FORM 990, PART XI, LINE 9 STRIDES FOR CJD EXPENSE 63,519 STRIDES FOR CJD EXPENSE -63,519