2024-09-09T14:26:33-05:00 2024-06-30 860683059 BeachFleischman PLLC 1985 E River Road Suite 201 Tucson AZ 85718 990 2023-07-01 770355224 American Fibromyalgia Syndrome Association Inc AMER 5207331570 PO Box 32698 Tucson AZ 857512698 Kristin Thorson President 5207331570 2024-09-06 1 0 Kelly L Meltzer CPA P00633511 5203214600 2024-09-06 2023 2024-08-08 14:25:15Z Kristin Thorson PO Box 32698 Tucson AZ 857512698 139716 0 X www.fibromyalgiafund.org X 1993 CA Fund biomedical research on fibromyalgia and empower patients through education. 4 4 0 4 0 0 32312 114222 0 0 2487 25494 0 0 34799 139716 0 137080 0 0 0 0 0 0 0 5488 23881 5488 160961 29311 -21245 1011543 991823 0 0 1011543 991823 X The American Fibromyalgia Syndrome Association's (AFSA's) two missions are: (1) fund superior quality studies on fibromyalgia and (2) educate patients about this disease so that they can seek improved healthcare and achieve a better quality of life. 1 0 137080 137080 With research grants from AFSA, scientists advance the understanding of fibromyalgia. In the current year, AFSA funded Anna Woodbury, M.D., of Emory and Atlanta VA, to show how cranial electrical stimulation improves brain function and reduces the symptoms of fibromyalgia. In addition, we funded Amir Minerbi, M.D., Ph.D., of Israel, to look at the impact of gut bacteria on the efficacy of a medication for treating 150 fibromyalgia patients. 11630 As part of our patient-education mission, we launched a new 80-page website to serve as a go-to resource for patients and their healthcare providers. The site includes sections on both drug and nondrug treatments, suggested lifestyle changes, coping strategies, advances in treatments and research, descriptions of projects funded, and detailed grant guidelines. This latter section is for researchers interested in applying for a grant and includes our latest request for applications (due March 1, 2025). 148710 1 1 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 1 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 X 4 4 1 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 0 0 0 CA X X Steve Thorson 5207495204 3519 N Sierra Madre Dr Tucson AZ 85749 X Kristin Thorson President 40.00 X X 0 0 0 Steve Thorson Vice President & Secretary 10.00 X X 0 0 0 Jennifer E Randle Chief Financial Officer 0.20 X X 0 0 0 Brent Songer Director 0.20 X 0 0 0 0 0 0 0 0 0 0 0 114222 114222 25494 25494 139716 0 0 25494 39230 39230 97850 97850 1500 1500 130 130 1089 1089 7484 881 6603 2653 2653 Website 10749 10749 Licenses and permits 276 276 160961 148710 12251 0 109510 145620 681809 553454 220224 292749 1011543 991823 0 0 X 0 0 0 0 1011543 991823 1011543 991823 1011543 991823 -21245 1525 0 X 0 0 0 X 72526 60113 57576 32312 114222 336749 72526 60113 57576 32312 114222 336749 137961 198788 716 32 32 2487 25494 28761 365510 0.54390 0.74580 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 160961 160961 32192 8048 0 0 2028 1689 1098 32192 37007 55511 507 422 275 8048 9252 13878 1 Middle East and North Africa 0 0 Grants to recipients located in region Research on fibromyalgia 97850 0 0 0 0 0 0 97850 0 97850 Middle East and North Africa Investigate the role of gut microbes in a large-scale clinical trial involving fibromyalgia patients 97850 Check 0 1 0 0 0 0 0 0 Part I, Line 2: All grant recipients (both principal investigator and institutional grants officer) must sign a "Conditions of Award" which describes mandatory quarterly reporting of progress on projects funded (including financial accounting). The project duration must be specified and if there are any project delays or unexpected problems, AFSA must be notified immediately. In addition, the investigator is expected to submit the data from the study to a peer-reviewed medical journal for publication within 3 months of completing the study. The published study must indicate that AFSA was the source of the funding for the project and a copy of the accepted medical journal report must be sent to AFSA. Regular communication via email and telephone between AFSA and the principal investigator occurs throughout the study as warranted. Also, a full financial accounting of the study is sent to AFSA upon project completion and any unused funds must be returned. Principal investigators are encouraged to use the data obtained from their AFSA study to apply to larger granting institutions so that they may continue their investigations in the field of fibromyalgia. Part I, line 3: Amounts reported at Part I Column (f) represent cash-basis expenditures. 1 Foundation for Atlanta Veterans Education and Research Inc 1670 Clairmont Rd 151F Decatur GA 30033 581857346 501(c)(3) 39230 0 Fibromyalgia Research 1 Part I, Line 2: All grant recipients (both principal investigator and institutional grants officer) must sign a "Conditions of Award" which describes mandatory quarterly reporting of progress on projects funded (including financial accounting). The project duration must be specified and if there are any project delays or unexpected problems, AFSA must be notified immediately. In addition, the investigator is expected to submit the data from the study to a peer-reviewed medical journal for publication within 3 months of completing the study. The published study must indicate that AFSA was the source of the funding for the project and a copy of the accepted medical journal report must be sent to AFSA. Regular communication via email and telephone between AFSA and the principal investigator occurs throughout the study as warranted. Also, a full financial accounting of the study is sent to AFSA upon project completion and any unused funds must be returned. Principal investigators are encouraged to use the data obtained from their AFSA study to apply to larger granting institutions so that they may continue their investigations in the field of fibromyalgia. Form 990, Part III, line 2 As part of our patient-education mission, we launched a new 80-page website to serve as a go-to resource for patients and their healthcare providers. The site includes sections on both drug and nondrug treatments, suggested lifestyle changes, coping strategies, advances in treatments and research, descriptions of projects funded, and detailed grant guidelines. Form 990, Part VI, Section A, line 2 Steve and Kristin Thorson are married. Form 990, Part VI, Section B, line 11b Form 990 is prepared by a CPA and a draft return is reviewed by the President and Vice President. Once the President and Vice President approve the draft, a copy is emailed to the entire board prior to filing. Form 990, Part VI, Section B, line 12c The Conflict of Interest (COI) document covers any director, officer, or member of a committee with governing board delegated powers, who has a direct or indirect financial interest in another entity doing business with AFSA. A COI can occur when an officer, director, or trustee's obligation to further AFSA's charitable purpose is at odds with their own financial interests. The interested person has a duty to disclose the potential conflict, which will be discussed at an AFSA board meeting. The COI shall be reviewed and voted on at a board meeting, with the interested party abstaining from the vote. The minutes of the governing board meeting will include the conflict and its resolution. Board members are required to review and sign the COI document each year. Form 990, Part VI, Section B, line 15 AFSA does not pay any compensation, and therefore does not have a process in place for determining compensation. Form 990, Part VI, Section C, line 19 The organization makes its governing documents and financial statements for the past three years available on its website. In addition, they will send this information to anyone upon request. Form 990 is also available online at www.guidestar.org.