2024-06-20T15:15:45-07:00 2023-12-31 112883699 SABEL & OPLINGER CPA PC 106 Prospect St Southampton NY 11968 990 2023-01-01 455437249 DYSAUTONOMIA INTERNATIONAL INC DYSA 6312021720 PO BOX 596 EAST MORICHES NY 11940 SHANNON KOPLITZ Treasurer 2024-06-20 true SHANNON KOPLITZ 999009999 true ROBERT J STREBEL CPA P00435213 6312832370 3 AAL1 IAL1 FAL1 2023 2023-04-26 12:10:37Z SHANNON KOPLITZ PO BOX 596 EAST MORICHES NY 11940 1235829 false X WWW.DYSAUTONOMIAINTERNATIONAL.ORG X 2012 NY To increase awareness of Dysautonomia within the medical community and the general public and raise funds for dysautonomia research. 7 6 10 300 0 1481630 1118815 13000 116462 456 552 -9420 -14486 1485666 1221343 340000 263200 0 401117 502809 0 147673 272454 475563 1013571 1241572 472095 -20229 2828501 2754023 164134 103739 2664367 2650284 X To increase awareness of Dysautonomia within the medical community and the general public and raise funds for dysautonomia research. false false 334580 263200 Providing research funding for projects at major University Research Centers. 324918 114532 Conferences to educate patients, caregivers and medicalprofessionals on dysautonomia conditions, treatments and research. 231935 1890 Advocacy Initiatives - Patient Support and Empowerment programs. 184121 40 1075554 true true false false false false false false false false true false false false false true true false false false false true false false true false false true false false false false false false false false false false false false false false false false false false false true 1 0 true 10 true false false false false false false false 0 false false false false false false false X 7 6 false false false false false false false true true false false true true true true true true true true false AK AL AR CA CO CT DC FL GA HI IL KS KY LA MA MD ME MI MN MO MS NC ND NH NJ NM NV NY OH OK OR PA RI SC TN TX UT VA WA WI WV X X X SHANNON KOPLITZ 6312021720 PO BOX 596 EAST MORICHES NY 11940 LAUREN STILES JD President & CEO 70.00 0.00 X X 131250 0 0 AMY KOHUT JD CH. COMPL OFCR 2.00 0.00 X X 0 0 0 JACQUELINE RUTTER GULLY Secretary 10.00 0.00 X X 0 0 0 IRENE COLLINS Vice President 2.00 0.00 X X 0 0 0 SHANNON KOPLITZ Treasurer & CFO 10.00 0.00 X X 0 0 0 LIZA FISHER MBA Director 2.00 0.00 X 0 0 0 SALVATORE DESENA MD Director 2.00 0.00 X 0 0 0 131250 1 false false false 0 162449 956366 1118815 CONFERENCES 541700 116462 116462 116462 552 552 0 0 0 0 162449 14486 -14486 0 0 0 1221343 116462 552 X 215200 215200 0 48000 48000 0 131250 123375 6562 1313 0 326122 259130 8080 58912 0 4678 3650 155 873 40759 34048 1473 5238 0 1222 954 40 228 13900 10844 460 2596 0 0 0 315811 296660 19151 2224 1610 614 1194 768 19 407 16038 9772 302 5964 0 19093 14894 633 3566 20286 16253 4033 0 600 548 52 0 0 1518 1154 221 143 4047 3157 134 756 BANK and credit card FEES 23953 4017 19936 SUPPLIES 23625 10829 12796 Postage and Shipping 11055 2543 22 8490 FUNDRAISING 7247 7247 13750 10901 244 2605 1241572 1075554 18345 147673 449782 488642 2272156 2239260 0 78333 0 0 0 0 0 9875 2714 16332 13010 4839 3322 12016 18585 0 0 0 1500 1500 2828501 2754023 7358 2352 156776 101387 164134 103739 X 2419973 2253484 244394 396800 2664367 2650284 2828501 2754023 -20229 6146 X false true X true false X 1082127 1236905 1123830 1481630 1118815 6043307 172735 4100 29837 4310 210982 0 0 0 1254862 1241005 1153667 1485940 1118815 6254289 13683 9565 8108 6366 37722 239039 293238 33828 60452 22624 649181 252722 302803 41936 66818 22624 686903 5567386 1597 818 642 456 3513 0 1597 818 642 456 3513 0 0 1256459 1241823 1154309 1486396 1118815 6257802 0.88970 0.78770 0.00060 0.00080 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 16332 13010 3322 3322 X 1241975 6146 14486 20632 1221343 1221343 1256058 14486 14486 1241572 1241572 Part X : FIN48 Footnote The Organization has been classified by the Internal Revenue Service as a publicly supported tax-exempt charity pursuant to IRC Section 501(c)(3) and as a not-for-profit corporation under the laws of New York State. Accordingly, no provision for federal or state income taxes is required. As of December 31, 2023, no amounts have been recognized for uncertain income tax positions. Part XI, Line 2d: Other revenue amounts included in F/S but not included on form 990 DIRECT FUNDRAISING EXPENSES $14486 Part XII, Line 2d: Other expenses and losses per audited F/S DIRECT FUNDRAISING EXPENSES $14486 NORTH AMERICA POTS RESEARCH 15000 CHECK OCEANIA POTS RESEARCH 33000 CHECK 2 false false false false false false X X X false NY AL AK AR CA CO CT DC FL GA HI IL KS KY LA ME MD MA MI MN MS MO NV NH NJ NM NC ND OH OK OR PA RI SC TN TX UT VA WA WV WI FUNDRAISING EVENTS 162449 162449 14486 162449 162449 14486 14486 -14486 true JOHN HOPKIN UNIVERSTY 600 N Wolfe St BALTIMORE MD 21287 15000 0 TCD Device Grant 2022-10 JOHN HOPKIN UNIVERSTY 600 N Wolfe St BALTIMORE MD 21287 25000 0 Novel Autoantibodies Patients w/POT MARY HITCHCOCK HOSPITAL ONE MEDICAL CENTER DR LEBANON NH 03756 15000 0 TCD Device Dr. Nathanial Robbins Regents of Univ of CALIFORNIA 9500 Gilman Drive 0678 LaJolla CA 92093 956996144 30200 0 mitochondrial/immune function pots THE METROLHEALTH 2500 METROLHEALTH DR CLEVELAND OH 44109 15000 0 IMMUNOLOGY APPROACH TO DISSECTING University of Toledo 3000 Arlington Ave Toledo OH 43606 346401483 20000 0 POTS Research UNIVERSITY OF UTAH 30 N Medical Drive Rm 4C104 Salt Lake City UT 84132 45000 0 Dr. Melissa Cortez Grant 2202-5 -pu UNIVSERSITY OF TEXAS 5323 Harry Hines Blvd DALLAS TX 75390 756002868 50000 0 IVIG in Postural Tachycardia Syndro 3 5 Grantmaker's Description of How Grants are Used Dysautonomia International (DI) requires that all investigators, collaborators and sub-contractors who receive funding through the DI's Grants Program comply with our Policies Governing the Award of Research Grants (Policies). Investigators will be provided a copy of current Policies when invited to apply for funding. Acceptance of grant funding from Dysautonomia International acknowledges consent and agreement to comply with these Policies by the Principal Investigator.SEMI-ANNUAL AND POST GRANT REPORTS ARE REQUIRED. Form 990, Part III, Line 4d OTHER PROGRAM SERVICES 4: Advocacy Initiatives - Patient Support and Empowerment programs. OTHER PROGRAM SERVICES 5: Clinician education. Form 990, Part VI, Section B, Line 11b THE BOARD WILL REVIEW AND APPROVE THE TAX RETURNS PRIOR TO SUBMISSION. Form 990, Part VI, Section B, Line 12c ALL CONFLICTS ARE DISCUSSED ANNUALLY AT A BOARD MEETING. Form 990, Part VI, Section B, Line 15a THE CEO SALARY IS DETERMINED BY INDEPENDENT NON-EMPLOYEE MEMBERS OF THE BOARD OF DIRECTORS AFTER A CAREFUL COMPARATIVE REVIEW OF SALARIES FOR SIMILARLY QUALIFIED INDIVIDUALS IN SIMILAR POSITIONS. Form 990, Part VI, Section B, Line 15b THE CEO AND OTHER STAFF SALARIES WERE SET BY INDEPENDENT NON-EMPLOYEE MEMBERS OF THE BOARD OF DIRECTORS AFTER A CAREFUL COMPARATIVE REVIEW OF SALARIES FOR SIMILARLY QUALIFIED INDIVIDUALS IN SIMILAR POSITIONS. Form 990, Part VI, Section C, Line 19 DOCUMENTS ARE AVAILABLE UPON REQUEST.