2024-12-29T20:48:53-07:00 2024-09-30 990EZ 2023-10-01 300585106 ROTHMUND-THOMSON SYNDROME FOUNDATION ROTH 7038023167 4307 Woodward Court Chantilly VA 20151 Shelley Sanders Treasurer 7038023167 2024-12-29 1 2023 2024-10-15 13:58:12Z X X www.rtsplace.org X X 54824 X 32835 0 0 0 0 0 0 13167 8742 6852 15057 0 0 0 80 47972 51021 0 0 0 0 103 1939 53063 -5091 59727 0 54636 59727 54636 0 0 0 0 59727 54636 0 0 59727 54636 Foster worldwide awareness and education about RTS and related disorders and to encourage research through support of scientists and physicians devoted to studying the clinical spectrum, molecular and cellular basis of RECQL4 and related syndromes Provided a funding to Baylor College of Medicine to sponsor continued research on RTS and to fund RTS clinical studies. 0 30000 Initiate contract with Geneal to transfer RTS patient registry and manage in the future 0 20000 Board member participation in National Organization of Rare Diseases meeting. 0 1021 51021 Laurie Sperou Vice-Chair 10 0 0 0 Shelley Sanders Treasurer 10 0 0 0 Sylvie Plante Secretary 10 0 0 0 Sean McMurray Director 10 0 0 0 Sheila Townsend Directer 5 0 0 0 Staci Hanson Chair 15 0 0 0 Kara Hanson Director 5 0 0 0 Bekkah Blankers Director 10 0 0 0 Tamara Madsen Director 5 0 0 0 Austin Kimmel Director 5 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 CA FL IL MA MD ME MI NH NM NY OK PA TX UT VA WA Shelley Sanders 4307 Woodward Court Chantilly VA 20151 7038023167 0 0 0 0 0 0 0 0 0 0 0 NONE NONE 1 X 59399 61557 55568 31322 31335 239181 59399 61557 55568 31322 31335 239181 239181 0 0 0 0 119 160 1665 75 80 2099 241280 0 0.99130 0.99164 X Schedule A, Part II, Line 10 Miscellaneous credit from bank transactions and transfers. Form 990-EZ, Part I, Line 8 Miscellaneous credit from transactions. Form 990-EZ, Part I, Line 10 Costs associated with attending NORD conference, establishing contract with Genial for Patient Registry, and Donation to Baylor College of Medicine/Texas Children's Cancer Center for RTS related activity. Form 990-EZ, Part I, Line 16 Normal operating expenses associated with renewing annual memberships and paying annual renewal fees and meeting costs.