2024-05-03T14:31:55-05:00 2023-06-30 111986323 MARCUM LLP 1899 L STREET NW SUITE 850 WASHINGTON DC 20036 990 2022-07-01 824218205 ASH REGISTRY INC ASHR 2027760544 2021 L STREET NW 900 WASHINGTON DC 20036 MATTHEW GERTZOG EXECUTIVE DIRECTOR 2027760544 2024-05-03 1 MATTHEW GERTZOG XXX-XX-XXXX 0 FRANK H SMITH P00639053 2022274000 2024-05-03 3 AAL1 IAL1 2022 2023-04-26 12:10:37Z ASH RESEARCH COLLABORATIVE MATTHEW GERTZOG 2021 L STREET NW 900 WASHINGTON DC 20036 3222521 0 X WWW.ASHRESEARCHCOLLABORATIVE.ORG X 2017 DC SEE PART III, LINE 1. 13 9 0 130 0 0 1446904 3172521 0 50000 0 0 -425030 0 1021874 3222521 0 2014356 0 0 2108448 2490526 0 0 0 7981116 6557471 10089564 11062353 -9067690 -7839832 1364727 2680075 29373615 38528795 -28008888 -35848720 X COLLABORATIVE PARTNERSHIPS TO ACCELERATE PROGRESS IN HEMATOLOGY, WITH THE ULTIMATE GOAL OF IMPROVING THE LIVES OF PEOPLE AFFECTED BY BLOOD DISEASES. THE FOUNDATION OF THE ASH RC IS ITS DATA REPOSITORY, THE DATA HUB. THIS TECHNOLOGY PLATFORM FACILITATES THE EXCHANGE OF INFORMATION BY AGGREGATING, AND MAKING AVAILABLE FOR INQUIRY, RESEARCH-GRADE DATA ON HEMATOLOGIC DISEASES. THE SECOND COMPONENT OF THE ASH RC IS THE SICKLE CELL DISEASE (SCD) CLINICAL TRIALS NETWORK. THE GOAL OF THE NETWORK IS TO CREATE A NETWORK OF COLLABORATING CLINICAL RESEARCH SITES TO ACCELERATE AND OPTIMIZE CLINICAL TRIALS RESEARCH IN SCD AND IMPROVE OUTCOMES FOR INDIVIDUALS LIVING WITH SICKLE CELL DISEASE. 0 0 9056527 2014356 50000 THE ASH RC DATA HUB WAS CREATED TO FACILITATE THE SHARING OF DATA ON BENIGN AND MALIGNANT HEMATOLOGIC CONDITIONS TO SUPPORT SCIENTIFIC INQUIRY AND DISCOVERY. AS A MAJOR INITIATIVE WITHIN ASH RC, THE DATA HUB AIMS TO CREATE THE LARGEST SHARED INFORMATION RESOURCE WITHIN THE GLOBAL HEMATOLOGY COMMUNITY. 9056527 1 1 0 0 0 0 0 0 0 0 1 0 0 0 1 1 0 1 0 0 0 0 0 0 0 0 0 1 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 1 26 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 X 13 9 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 0 0 0 X TIFFANY AKE 2027760544 2021 L STREET NW 900 WASHINGTON DC 20036 MATTHEW GERTZOG EXECUTIVE DIRECTOR 18.00 17.00 X 284557 284555 66952 ROBERT PLOVNICK CHIEF MEDICAL QUALITY OFFICER 18.00 17.00 X 226329 226329 60654 KATHLEEN HEWITT SENIOR DIRECTOR, DATA HUB 40.00 X 364349 0 52888 NICOLE MORTIER DIRECTOR, SCD CTN - UNTIL 05/2023 40.00 X 258020 0 38557 MICHELLE WALSER DEPUTY DIRECTOR, OPERATIONS 40.00 X 213178 0 50775 SUSAN ROGERS SENIOR MANAGER LEARNING COMMUNITY PROGRAMS 40.00 X 169832 0 20906 WENDY STOCK MD COUNCILLOR 2.00 2.00 X 0 17500 0 MARK CROWTHERMDMSCFRCPCFRSC TREASURER - UNTIL 12/2022 2.00 2.00 X X 0 11000 0 ROBERT A BRODSKY MD PRESIDENT 2.00 2.00 X X 0 6750 0 CYNTHIA E DUNBAR MD SECRETARY 2.00 2.00 X X 0 3000 0 JANE N WINTER MD PRESIDENT - UNTIL 12/2022 2.00 2.00 X X 0 0 0 MOHANDAS NARLADSC PRESEDENT-ELECT 2.00 2.00 X X 0 0 0 BELINDA AVALOS MD VICE PRESIDENT - AS OF 12/2022 2.00 2.00 X X 0 0 0 JOSEPH MIKHAEL MD MED TREASURER - AS OF 12/2022 2.00 2.00 X 0 0 0 ARNOLD GANSER MD COUNCILLOR - UNTIL 12/2022 2.00 2.00 X 0 0 0 CHRISTOPHER R FLOWERS MD MSC COUNCILLOR 2.00 2.00 X 0 0 0 ALISON LOREN COUNCILLOR 2.00 2.00 X 0 0 0 BOB LOWENBERG MD PHD COUNCILLOR 2.00 2.00 X 0 0 0 CHARLOTTE MARIE NIEMEYER MD COUNCILLOR 2.00 2.00 X 0 0 0 SARAH H O'BRIEN MD MSC COUNCILLOR 2.00 2.00 X 0 0 0 BETTY PACE MD COUNCILLOR 2.00 2.00 X 0 0 0 JAMILE M SHAMMO MD COUNCILLOR 2.00 2.00 X 0 0 0 1516265 549134 290732 15 0 1 0 IQVIA RDS INC 4820 EMPEROR BLVD DURHAM NC 27703 SOFTWARE DEV./DATA MANAGMENT 2754500 BREAKTHROUGH HEALTHCARE 2803 MANHATTAN AVENUE BALTIMORE MD 21215 DATA INFO./ANALYTICS & GRANT MGMT 384682 STRATEGIC RESEARCH SOLUTIONS 108 S PINE STREET FENTON MI 48430 MARKETING RESEARCH 223875 WCG CONSULTING WESTERN INSTITUTIONAL REVIEW BOARD HARTFORD CT 061150434 RESEARCH CONSULTING 113455 CENTER FOR APPLIED RESEARCH 1700 MARKET STREET SUITE 2140 PHILADELPHIA PA 19103 RESEARCH CONSULTING 112657 22 1037890 2134631 3172521 PROJECTS 900099 50000 50000 50000 3222521 50000 0 0 X 2014356 2014356 333757 300382 33375 1670205 1159670 510535 139220 98258 40962 220926 157059 63867 126418 91727 34691 106762 103772 2990 4150 4150 4556490 4376510 179980 33337 2350 30987 3984 2156 1828 28922 28112 810 57755 37757 19998 46046 30102 15944 52391 52391 326637 326637 COST AGREEMENT 980000 980000 HONORARIA 177575 177575 STIPENDS 98786 98786 SUBSCR/PUBLICATIONS 50445 50445 34191 873 33318 11062353 9056527 2005826 0 305000 437491 868037 2106696 5411 2000 261955 128067 186279 133888 1364727 2680075 238178 907173 29135437 37621622 29373615 38528795 X -28008888 -37661999 0 1813279 -28008888 -35848720 1364727 2680075 -7839832 0 X 0 1 X 1 0 X X 1 AMERICAN SOCIETY OF HEMATOLOGY INC 237080568 10 1 0 0 1 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 261955 128067 133888 133888 DUE TO RELATED PARTY 37621622 37621622 X 3222521 0 3222521 0 3222521 11062353 0 11062353 0 11062353 PART X, LINE 2: THE SOCIETY EVALUATED ITS UNCERTAINTY IN INCOME TAXES FOR THE YEAR ENDED JUNE 30, 2023, AND DETERMINED THAT THERE WERE NO MATTERS THAT WOULD REQUIRE RECOGNITION IN THE CONSOLIDATED FINANCIAL STATEMENTS OR THAT MAY HAVE ANY EFFECT ON ITS TAX-EXEMPT STATUS; AND THERE ARE CURRENTLY NO EXAMINATIONS PENDING OR IN PROGRESS. 1 UNIVERSITY OF ALABAMA AT BIRMINGHAM 801 5TH AVE SOUTH BIRMINGHAM AL 35233 636005396 501(C)(3) 174997 0 SITE COORDINATOR UNIVERSITY OF CONNECTICUT HEALTH CENTER 263 FARMINGON AVENUE FARMINGTON CT 06030 521725543 501(C)(3) 167780 0 SITE COORDINATOR/SITE STIPEND JOHNS HOPKINS UNIVERSITY CTR 12529 COLLECTIONS CENTER DRIVE CHICAGO IL 60693 520595110 501(C)(3) 164218 0 SITE COORDINATOR/INVESTIGATOR WASHINGTON UNIVERSITY 7425 FORSYTH CAMPUS 1034 CLAYTON MO 63105 430653611 501(C)(3) 155000 0 SITE COORDINATOR/INVESTIGATOR/SITE STIPEND PRISMA HEALTH-UPSTATE 605 GROVE ROAD GREENVILLE SC 29605 811723202 501(C)(3) 124401 0 SITE COORDINATOR THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO 1855 FOLSOM STREET SUITE 425 SAN FRANCISCO CA 94103 946036493 501(C)(3) 116666 0 SITE COORDINATOR MEDICAL COLLEGE OF WISCONSIN 8701 WATERTOWN PLANK ROAD MILWAUKEE WI 53226 390806261 501(C)(3) 112267 0 SITE COORDINATOR CHILDREN'S HOSPITAL MEDICAL CENTER 3333 BURNET AVENUE MLC 4900 CINCINNATI OH 45229 310833936 501(C)(3) 106720 0 SITE COORDINATOR/INVESTIGATOR ANN & ROBERT H LURIE CHILDREN'S HOSPITAL OF CHICAGO 225 EAST CHICAGO AVENUE CHICAGO IL 60611 362170833 501(C)(3) 105868 0 SITE COORDINATOR AUGUSTA UNIVERSITY RESEARCH INSTITUTE 1120 15TH STREET CJ3301 AUGUSTA GA 30912 581418202 501(C)(3) 104999 0 SITE COORDINATOR/SITE STIPEND DUKE UNIVERSITY PO BOX 602651 CHARLOTTE NC 28260 560532129 501(C)(3) 100000 0 SITE COORDINATOR MONTEFIORE MEDICAL CENTER 111 EAST 210TH STREET BRONX NY 10467 131740114 501(C)(3) 100000 0 SITE COORDINATOR NEWARK BETH ISRAEL MEDICAL CENTER 201 LYONS AVENUE NEWARK NJ 07112 223452311 501(C)(3) 100000 0 SITE COORDINATOR CHILDREN'S HOSPITAL OF PHILADELPHIA 2716 SOUTH STREET PHILADELPHIA PA 191462305 231352166 501(C)(3) 84833 0 SITE COORDINATOR BAYLOR COLLEGE OF MEDICINE PO BOX 301207 DALLAS TX 753031207 741613878 501(C)(3) 83411 0 SITE COORDINATOR UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL 104 AIRPORT DRIVE CB 1220 CHAPEL HILL NC 275991220 566001393 501(C)(3) 67500 0 SITE COORDINATOR/INVESTIGATOR UNIVERSITY OF CALIFORNIA - SAN FRANCISCO UCSF MAIN DEP PO BOX 748872 LOS ANGELES CA 900744872 946036493 501(C)(3) 50000 0 SITE COORDINATOR/INVESTIGATOR CHILDREN'S NATIONAL MEDICAL CENTER 111 MICHIGAN AVENUE NW WASHINGTON DC 20010 561654453 501(C)(3) 48253 0 SITE COORDINATOR NEW YORK CITY HEALTH & HOSPITAL CORPORATION 50 WATER STREET NEW YORK NY 10004 132655001 501(C)(3) 39292 0 SITE COORDINATOR/SITE STIPEND UT SOUTHWESTERN MEDICAL CENTER PO BOX 841765 DALLAS TX 75284 756002868 501(C)(3) 8151 0 SITE COORDINATOR 20 0 PART I, LINE 2: ASH RC COLLECTS AND STORES THE RESEARCH SITE'S REPORTED PLANNED USE OF THE GRANT/ASSISTANCE AT THE BEGINNING OF THE GRANT YEAR AND ALSO COLLECTS AND STORES THE RESEARCH SITE'S REPORTED ACTUAL USE OF THE FUNDS AT THE END OF THE YEAR CYCLE. THE AWARD IS PROVIDED BASED ON A CONTRACTUAL AGREEMENT WITH THE SITES TO PROVIDE SITE SUPPORT. THEY WENT THROUGH A SITE SELECTION PROCESS WHEN THE SCD CLINICAL TRIALS NETWORK WAS ESTABLISHED TO ENSURE THEY MET THE CRITERIA NEEDED TO PARTICIPATE IN THIS PROGRAM. CHECK IN CALLS ARE CONDUCTED THROUGHOUT THE YEAR WITH RESEARCH SITE PERSONNEL AND THEY HAVE TARGETS TO MEET THROUGHOUT THE YEAR. WE ARE TRACKING PROGRESS ON KEY PERFORMANCE METRICS THAT ARE OUTLINED IN THEIR AWARD LETTER. THEIR FINAL REPORTING IS ALSO INCLUDES THIS INFORMATION AND A BREAKDOWN OF HOW THE FUNDS WERE USED. 0 0 0 0 0 0 0 0 0 MATTHEW GERTZOG EXECUTIVE DIRECTOR 247888 247887 20000 20000 16669 16668 15250 15250 18226 18226 318033 318031 0 0 ROBERT PLOVNICK CHIEF MEDICAL QUALITY OFFICER 209074 209074 10000 10000 7255 7255 15250 15250 15077 15077 256656 256656 0 0 KATHLEEN HEWITT SENIOR DIRECTOR, DATA HUB 357160 0 0 0 7189 0 30500 0 22388 0 417237 0 0 0 NICOLE MORTIER DIRECTOR, SCD CTN - UNTIL 05/2023 256058 0 0 0 1962 0 24375 0 14182 0 296577 0 0 0 MICHELLE WALSER DEPUTY DIRECTOR, OPERATIONS 200355 0 10000 0 2823 0 20563 0 30212 0 263953 0 0 0 SUSAN ROGERS SENIOR MANAGER LEARNING COMMUNITY PROGRAMS 164412 0 0 0 5420 0 16456 0 4450 0 190738 0 0 0 PART I, LINE 3 ASH RC RELIED ON ASH, A RELATED ORGANIZATION, TO DETERMINE COMPENSATION. ASH USED THE FOLLOWING METHODS TO DETERMINE COMPENSATION: - INDEPENDENT COMPENSATION CONSULTANT - COMPENSATION SURVEY OR STUDY - APPROVAL BY THE BOARD OR COMPENSATION COMMITTEE - FORM 990 OF OTHER ORGANIZATIONS - COMPENSATION COMMITTEE PARTS I AND II: ASH RC DOES NOT DIRECTLY HIRE OR COMPENSATE EMPLOYEES. AMERICAN SOCIETY OF HEMATOLOGY, INC., A RELATED ORGANIZATION EXEMPT UNDER IRS SECTION 501(C)(3), IS RESPONSIBLE FOR FILING FORMS W-2S FOR ALL EMPLOYEES. THE COMPENSATION AND RELATED NON-TAXABLE BENEFITS ARE REPORTED ON PART VII, SECTION A AS WELL AS PART IX OF EACH ORGANIZATION AS INCURRED. FORM 990, PART VI, SECTION B, LINE 11B THE FORM 990 WAS PREPARED BY THE OUTSIDE ACCOUNTANTS AND REVIEWED FIRST BY THE CHIEF FINANCIAL OFFICER, AND THEN BY THE EXECUTIVE DIRECTOR. IT WAS THEN SENT TO THE ENTIRE BOARD PRIOR TO FILING WITH THE IRS. FORM 990, PART VI, SECTION B, LINE 12C ASH RC'S CONFLICT OF INTEREST POLICY QUESTIONNAIRE IS FILLED OUT ELECTRONICALLY BY ALL BOARD MEMBERS AND OFFICERS. BEFORE EACH BOARD OR COMMITTEE MEETING A MEMBER IS PUT IN CHARGE OF REVIEWING ALL CONFLICT OF INTEREST STATEMENTS FOR THE MEMBERS ATTENDING. FURTHERMORE, MEMBERS ARE ASKED TO DISCLOSE ANY CHANGES BEFORE EVERY MEETING. WHEN AN ASH RC MEMBER HAS A CONFLICT, S/HE WILL NOT: 1. TAKE ANY ACTION ON BEHALF OF ASH CONCERNING THE SUBJECT IN CONFLICT OR ANY ISSUE RELEVANT TO THE SUBJECT IN CONFLICT; 2. PARTICIPATE IN DISCUSSIONS ON THE SUBJECT WITHOUT FULL DISCLOSURE; 3. PARTICIPATE IN DECISION-MAKING DISCUSSIONS OR CAST A VOTE; 4. IMPLY THAT HE/SHE IS ACTING ON BEHALF OF ASH RC WHEN DISCUSSING THE RELEVANT SUBJECT WITH THIRD PARTIES; OR 5. FAIL TO CLARIFY WITH THIRD PARTIES WITH WHOM HE/SHE DEALS ON THE RELEVANT SUBJECT THAT HE/SHE IS NOT ACTING ON BEHALF OF ASH RC. FORM 990, PART VI, SECTION B, LINE 15 ASH RC RELIES ON A RELATED ORGANIZATION, THE AMERICAN SOCIETY OF HEMATOLOGY (ASH), TO DETERMINE COMPENSATION. AS PART OF THE PROCESS FOR DETERMINING THE COMPENSATION FOR ALL OF ITS EMPLOYEES, THE COMPENSATION FOR KEY EMPLOYEES OF THE ORGANIZATION (INCLUDING THE EXECUTIVE DIRECTOR OF ASH RC) IS REVIEWED BY AN OUTSIDE HR GROUP AND APPROVED BY THE EXECUTIVE DIRECTOR OF ASH. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION'S GOVERNING DOCUMENTS AND FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST. THE CONFLICT OF INTEREST POLICY IS LOCATED ON THE ORGANIZATION'S WEBSITE. FORM 990, PART IX, LINE 11G CONSULTANTS: PROGRAM SERVICE EXPENSES 2,360,810. MANAGEMENT AND GENERAL EXPENSES 126,055. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 2,486,865. SITE COORDINATORS: PROGRAM SERVICE EXPENSES 1,722,217. MANAGEMENT AND GENERAL EXPENSES 49,620. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 1,771,837. OTHER PROFESSIONAL FEES: PROGRAM SERVICE EXPENSES 263,215. MANAGEMENT AND GENERAL EXPENSES 3,433. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 266,648. TEMPORARY SUPPORT: PROGRAM SERVICE EXPENSES 30,268. MANAGEMENT AND GENERAL EXPENSES 872. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 31,140. AMERICAN SOCIETY OF HEMATOLOGY INC 2021 L STREET NW SUITE 900 WASHINGTON DC 20036 237080568 SEE PART VII DC 501(C)(3) LINE 10 N/A 0 0 0 1 0 1 0 0 0 0 0 0 0 0 1 1 0 1 0 0