2024-04-19T10:18:56-04:00 2023-12-31 260236956 Linda Patterson CPA PA 5732 Whistlewood Circle Sarasota FL 34232 990 2023-01-01 273025707 Macular Degeneration Association MACU 5969 Cattleridge Blvd STE 100 Sarasota FL 34232 Linda Patterson Treasurer 9418934387 2024-02-29 true Linda Patterson XXX-XX-XXXX true Linda Patterson P00543037 9417354042 2024-04-19 2 00 AAL1 IAL1 2023 2023-04-26 12:10:37Z Lawrence Hoffheimer 12282094 false X www.macularhope.org X 2010 FL The mission of the Macular Degeneration Association (MDA)is to find a cure for macular degeneration. We disseminate research findings that have the potential to produce new treatments and present educational programs to help those affected by this disease. 4 1 7 0 0 2810422 3224423 0 83675 473880 0 2894097 3698303 0 0 575029 668303 79302 30000 626444 1513831 1736439 2168162 2434742 725935 1263561 4842918 5908615 133911 174203 4709007 5734412 The mission of the Macular Degeneration Association (MDA)is to find a cure for macular degeneration. We disseminate research findings that have the potential to produce new treatments and present educational programs to help those affected by this disease. false false 685564 The Macular Degeneration Association (MDA) created informative and necessary educational programs for those affected by macular degeneration and diabetic macular edema. These programs not only provide information for the person who has been affected by either of these eye diseases but will bring precautionary measures to their family members and helpful information for their caregivers. All programs feature experts in the field of retina, providing information about risk factors, genetic predisposition, proper diagnosis, new treatment options, research information, clinical trials and new drug advances. Participants are given a chance to interact with the doctor and ask questions. They are also able to share their challenges and successes with the other attendees. 527245 The Macular Degeneration Association produces newsletters quarterly. The information provided is for those who have age-related macular degeneration, diabetic eye disease, glaucoma and cataracts. The newsletter provides educational information, new research, new drug therapies, clinical trials and treatments. The newsletters go out to 48,600 doctors, patients, families and caregivers. Brochures were designed and provided to doctors to help their patients navigate macular degeneration and find resources that can help. We have a very robust social media following including 17,111 followers on Facebook, 6,602 on Twitter, 4,800 on Linked In and 361 on Pinterest. 209122 Macular Degeneration Association has created a state-of-the-art website to provide an extensive number of resources and information to help those affected by macular degeneration and additional diseases that can affect macular degeneration. This website includes educational videos that are produced for patients, family members and caregivers. The website is ADA-compliant and is accessible to people with vision disabilities. There is also a feature for those who speak Spanish to convert English to Spanish. We continue to include up-to-date information on all eye diseases, new treatment options, research information, clinical trials and new drug advances. Our user-friendly website provides the user with friendly navigation, accessibility tools and information for patients, professionals, caregivers and families. This website has an average of 600,000 hits annually. 1421931 true true false false false false false false false false true false false false false true true false false false false false false true false false false false false true false false false false false false true false true false false false false true false false false false true 6 0 true 7 true false false false false false false false false false false false false X 4 1 true false false false false false false true false false false true true true true true true false false false AK AL AR AZ CA CO CT DC DE FL GA HI IA ID IL IN KS KY LA MA MD ME MI MN MO MS MT NC ND NE NH NJ NM NV NY OH OK OR PA RI SC SD TN TX UT VA VT WA WI WV WY X X X Linda Patterson 9418934387 5969 Cattleridge Blvd Sarasota FL 34232 Lawrence Hoffheimer Chairman of the Board 25.00 20.00 X X 178890 111390 5727 Linda Patterson Treasurer 20.00 20.00 X X 102500 65000 0 Donna Auger Director 40.00 0.00 X 144000 0 989 Dustin Tenney Employee 25.00 15.00 X 81146 36898 21001 Amy Carroll Secretary 2.00 2.00 X X 0 0 0 506536 213288 27717 3 false true false DirectMailcom 5540 Ketch Road Prince Frederick MD 20678 Direct Mail Servic 434356 1 3224423 109595 3224423 137878 137878 8919793 8583791 336002 336002 336002 3698303 473880 0 0 X 425390 284695 140695 193008 157013 26621 9374 989 989 48916 35968 12231 717 7850 3925 3925 30000 30000 35592 35592 560282 279898 54136 226248 52159 52159 40014 32011 7203 800 93844 75075 16892 1877 51485 50114 1234 137 174 174 12101 9681 2178 242 Paper & Postage 638349 287257 63835 287257 List Rental 153533 69090 15353 69090 Program Services 56047 56047 Telephone & Internet 11727 9381 2111 235 23282 18628 4187 467 2434742 1421931 386367 626444 X 1324653 529862 132465 662326 988079 742567 11190 15324 3472 174 3298 3843649 5147426 4842918 5908615 133911 174203 133911 174203 X 4709007 5734412 4709007 5734412 4842918 5908615 1263561 -238156 0 X false true X false false X 3341015 2026061 2385688 2810423 3224424 13787611 3341015 2026061 2385688 2810423 3224424 13787611 777562 13010049 27184 61553 90224 137878 316839 14104450 0.92240 0.91750 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 3472 174 3298 3298 X 3460147 -238156 -238156 3698303 3698303 2434742 2434742 2434742 Footnote for uncertain tax position under FIN 48 (Part X) Management has evaluated the effect of an accounting standard relating to accounting for uncertainty in income taxes. Management has determined that the Organization had no uncertain income tax positions that could have a significant effect on the consolidated financial statements for the year ended December 31, 2023. The Organizations federal income tax returns for fiscal years ended December 31, 2022, 2021 and 2020 are subject to examination by the Internal Revenue Service generally for three years after the federal income tax returns were filed. X X X X true Directmailcom Direct Mail Management false 2429924 30000 2399924 2429924 30000 2399924 All States Fundraiser agreements (Part I, line 2b(v)) Additional Payments to DirectMail.com Services & Expenses $434,356 List Rental 153,533 Paper 57,165 Postage 558,056 X false false false false false false false false false Lawrence Hoffheimer Chairman of the Board 144890 104390 34000 7000 5727 178890 117117 Linda Patterson Treasurer 102500 65000 102500 65000 Joanna Hoffheimer Family member of CEO 28150 Employee processes state registrations false X 3 109595 Trade Value false false false Officer directors etc family relationship Part VI line 2 Lawrence Hoffheimer and Amy Carroll are related family members. Committee meeting documentation Part VI line 8b No committee meetings were held. Form 990 governing body review Part VI line 11 All members of the board reviewed the tax return prior to submission to the Internal Revenue Service. Conflict of interest policy compliance Part VI line 12c Officers must sign annual disclosure staement disclosing conflicts of interest. CEO executive director top management comp Part VI line 15a Executive Compensation was compared to other entities reported on their Form 990s and approved by the Board. Other officer or key employee compensation Part VI line 15b Compensation is reviewed annually and approved by the Board. Governing documents etc available to public Part VI line 19 Available upon request. List of other fees for services expenses Part IX line 11g 11G Total Program Admin Fund RaisingCopywriting 14,200 6,390 1,420 6,390Data Management 23,327 10,497 2,333 10,497Direct Mail Processors 30,891 13,901 3,089 13,901Direct Mail Services 434,356 195,460 43,436 195,460Medical Director 50,000 50,000Honorariums 3,650 3,650Appraisal Fee 3,858 3,858 General explanation attachment Part IV, Schedule C, Line 17 All states recieve copies of Form 990. Parkinson Research Foundation Inc 5969 Cattleridge Blvd Suite 100 Sarasota FL 34232 200205035 Parkinson Disease - Research Education FL 501c3 10 N/A false false false false false false false false false false false true false false true true false false false false