2025-04-23T04:10:59-00:00 2024-12-31 363614997 Eccezion 5400 W Elm Street Suite 203 McHenry IL 60050 990 2024-01-01 364253176 Citizens United for Research in Epilepsy CITI 3122551801 420 N Wabash Ave STE 650 Chicago IL 60611 Beth Dean CEO 3122551801 2025-04-23 true Cheryden Juergensen P01252676 8153441300 2025-04-23 2024 2025-03-06 01:10:19Z CURE Epilepsy Beth Dean 420 N Wabash Ave STE 650 Chicago IL 60611 7755545 false X www.cureepilepsy.org X 1998 IL To find a cure for epilepsy by promoting and funding patient focused research. 16 16 22 285 0 6403752 6067462 0 355902 492012 -576491 -508827 6183163 6050647 2759409 2900590 0 2243543 2236039 0 679997 990398 1059980 5993350 6196609 189813 -145962 10587072 10689964 3627120 3693856 6959952 6996108 To find a cure for epilepsy by promoting and funding patient focused research. false false 4091235 Since its inception in 1998, CURE Epilepsy has raised more than 99 million to fund epilepsy research and other initiatives that will lead the way to cures for the epilepsies. CURE Epilepsy awards grants for novel research projects to prevent epilepsy related to pediatric epilepsy, post-traumatic epilepsy, treatment resistant epilepsies, sudden unexplained death in epilepsy SUDEP, and sleep and epilepsy advancing the search for a cure, eliminating treatment side effects, and reversing deficits caused by frequent seizures, CURE Epilepsy funds grants for young and established investigators and todate has awarded more than 285 grants in 18 countries around the world. 1089564 CURE Epilepsy believes that awareness is a critical vehicle to increase the amount of funding for epilepsy research and to share key learnings and opportunities for those impacted by epilepsy. CURE Epilepsy creates, sponsors and levers our website, webinars, seminars, podcasts, educational events and other digital communication to drive this critical awareness. 5180799 true true false true false false false false false false true false false false true true true false false false true true false false true false false true false true false false false false false false false false false false false false false false false false false true 13 0 true 22 true false false false false false true true false false false false false false X 16 16 false false false false false false false true true false false true true true true true true true false false AL AR CA CT FL GA HI IL KS KY MA MD MI MN MS NH NJ NM NY OK OR PA RI SC TN TX WI WV X X X John Anderluh 3122551801 420 N Wabash Ave Suite 650 Chicago IL 60611 Beth Dean CEO 037.50 X 329727 0 39754 Laura Lubbers CSO 037.50 X 330864 0 18085 Alysha BIehl Director of Development 037.50 X 164737 0 13101 John Anderluh CFO 037.50 X 115356 0 3884 Lisa Cotton Chair 004.00 X X 0 0 0 Shalee Cunneen Secretary 003.00 X X 0 0 0 Kathy McKenna Treasurer 004.00 X X 0 0 0 Steve Austin Director 002.00 X 0 0 0 Irina Colon Director 002.00 X 0 0 0 Kim Borden Director 002.00 X 0 0 0 Roger Heldman Director 002.00 X 0 0 0 Carrie Garman Director 002.00 X 0 0 0 Maureen Flood Rabus Director 002.00 X 0 0 0 David Reifman Director 002.00 X 0 0 0 Walter Kelly Director 002.00 X 0 0 0 Matt Schneider Director 002.00 X 0 0 0 Hannah Whitten Director 002.00 X 0 0 0 Kelly Cervantes Director 002.00 X 0 0 0 Justin Gover Chair Elect 002.00 X X 0 0 0 Michael Alexrod Director 002.00 X 0 0 0 940684 74824 4 false true false 2391625 532164 3143673 6067462 268531 268531 1300638 1077157 223481 223481 223481 99390 2391625 627741 -528351 Miscellanous 19524 19524 19524 6050647 19524 492012 2194759 2194759 0 705831 705831 0 445083 296447 49408 99228 0 1399976 918637 177336 304003 0 258319 156135 29663 72521 132661 80586 15050 37025 0 0 16275 10429 1672 4174 0 24029 24029 10074 6454 1036 2584 0 36721 16707 2295 17719 150564 125356 9280 15928 0 109995 73396 11771 24828 58943 22439 2852 33652 0 151146 139859 11287 0 0 25903 16597 2662 6644 12956 8302 1331 3323 Advocacy and Awareness 187708 187708 Subcontractors 203044 177650 1169 24225 Dues and Subscriptions 10944 4762 45 6137 Bank, Merchant, Investment Fees 47443 30399 4875 12169 14235 8346 1339 4550 6196609 5180799 335813 679997 544726 677181 1106132 1226240 32706 33080 432322 271482 68705 160840 8471391 8281560 363412 311063 10587072 10689964 124754 176048 3066066 3166290 28093 408207 351518 3627120 3693856 X 5305489 4865184 1654463 2130924 6959952 6996108 10587072 10689964 -145962 182118 X false true X true false X 6964176 6172734 5937146 6403752 6067462 31545270 6964176 6172734 5937146 6403752 6067462 31545270 2130846 29414424 105918 124018 140351 245340 268531 884158 32429428 358695 0.90700 0.91770 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 442077 439656 881733 1322600 40000 10000 50000 110519 109914 220433 330650 false 100519 83950 16569 202953 178942 24011 128850 8590 120260 160840 Financial derivatives and other financial products Closely-held equity interests Federal income taxes Operating Lease Liabilities 351518 351518 X 6220909 182118 12173 194291 6026618 24029 24029 6050647 6184753 12173 12173 6172580 24029 24029 6196609 X 2 The Organization is exempt from federal income taxes under Section 501c3 of the Internal Revenue Code and reported no unrelated business income for the year ended December 31, 2024 and 2023. Management represents there are no uncertain tax positions or other provision for income taxes that should be recognized in these financial statements. In addition, the Organization qualifies to receive deductible charitable contributions pursuant to Section 170b1Avi. true Europe Including Iceland and Greenland Grants to recipients in region 697331 Middle East and North Africa Grants to recipients in region 3500 North America Grants to recipients in region 5000 705831 705831 Europe Including Iceland and Greenland Research Grant 697331 Wire Middle East and North Africa Conference Grant 3500 Wire North America Conference Grant 5000 Wire 3 false false false false false false Part I Line 2 Grantees are required to make periodic progress reports Chicago benefit 1821229 1730139 91090 126943 225428 162845 NYC Benefit 131985 123685 8300 3653 17532 3875 29454 3 537801 537801 348 4567 14538 910 37648 2491015 2391625 99390 348 8220 159013 230213 229947 627741 -528351 true Boston Children's Hospital PO Box 414413 Boston MA 02241 042774441 501C3 250000 Research Grant University of Wisconsin Madison 21 N Park St Ste 6401 Madison WI 53715 396006492 501C3 250000 Research Grant St Judes Children's Hospital 262 Danny Thomas Place Memphis TN 38105 620646012 501C3 250000 Research Grant University of Michigan PO Box 223131 Pittsburgh PA 15251 386006309 501C3 250000 Research Grant University of Utah 201 S Preseidents Circle Salt Lake City UT 84112 876000525 501C3 199872 Research Grant Gryphon Bio Inc 6200 E Grayson St Ste 101 San Antonio TX 78215 825230170 C-Corp 150000 Research Grant Massachusetts General Hospital PO Box 414867 Boston MA 02241 041564655 501C3 125000 Research Grant University of California Los Angeles 405 Hilgard Ave Box 957089 Los Angeles CA 90095 956006143 501C3 125000 Research Grant Weil Medical College Cornell University PO Box 22371 New York NY 10087 150532082 501C3 115190 Research Grant Quiver Biosciences 150 Cambridgepark Drive Cambridge MA 02140 922683215 C-Corp 100000 Research Grant Yale University PO Box 1873 New Haven CT 06508 060646973 501C3 100000 Research Grant Morehouse School of Medicine 720 Westview Dr Atlanta GA 30310 580566205 501C3 80000 Research Grant American Epilepsy Society 135 South LaSalle Ste 2850 Chicago IL 60603 046112600 501C3 15500 Conference Grant 11 2 X X X X X false false false false false false false false false Beth Dean CEO 299894 29833 10101 29653 369481 Laura Lubbers CSO 301358 29506 9987 8098 348949 Alysha BIehl Director of Development 164737 5003 8098 177838 Form 990, Part VI, Section B, Line 11b Form 990 is reviewed by the finance manager, treasurer and chief executive officer. When the draft is approved, it is sent to the entire board Form 990, Part VI, Section B, Line 12c Each board member signs it annually and expects to self-monitor. Conflicts are dealt with on a case-by-case basis. Form 990, Part VI, Section C, Line 19 Governing documents and conflict of interest policy are not generally available to the public. The organizations financial statements are available on its website. Form 990, Part VI, Section B, Line 15a Comparable salary information is obtained and reviewed using an outside executive search firm. The board of directors has final approval and review compensation annually.