2024-01-19T15:14:53-05:00 2023-01-31 811343524 1SOURCE PARTNERS 701 S HOWARD AVE STE 203 TAMPA FL 33606 990 2022-02-01 411756085 AMYOTROPHIC LATERAL SCLEROSIS MN MINNESOTANORTH DAKOTASOUTH DAKOTA AMYO 6126720484 1919 UNIVERSITY AVE WEST SUITE 175 ST PAUL MN 55104 GREG MITCHELL CFO 6126720484 2024-01-19 GARY SHIPP 999009999 true PAUL DEGANCE P00443908 8132547222 2024-01-19 2022 2023-04-26 12:10:37Z ALS ASSOCIATION MNNDSD CHAPTER GREG MITCHELL 1919 UNIVERSITY AVE WEST SUITE 175 ST PAUL MN 55104 589351 false X WWW.ALS.ORG/MN-ND-SD X 1993 MN TO DISCOVER TREATMENTS AND A CURE FOR ALS, AND TO SERVE, ADVOCATE, AND EMPOWER PEOPLE AFFECTED BY ALS TO LIVE THEIR LIVES TO THE FULLEST. X 23 23 22 106 0 4662324 292784 0 -19743 65715 -70438 184407 4572143 542906 0 0 1602838 529579 0 434526 2318786 1654994 3921624 2184573 650519 -1641667 6104152 1499678 740115 148347 5364037 1351331 X TO DISCOVER TREATMENTS AND A CURE FOR ALS, AND TO SERVE, ADVOCATE, AND EMPOWER PEOPLE AFFECTED BY ALS TO LIVE THEIR LIVES TO THE FULLEST. false false 989021 CARE SERVICES - HELPING PEOPLE WITH ALS AND THEIR FAMILIES LIVE AS FULL AS A LIFE AS POSSIBLE THROUGH DIRECT PROGRAMS FOR PEOPLE LIVING WITH ALS (SEE SCHEDULE O FOR DETAIL), SUPPORT GROUPS, PHONE SUPPORT, AND REFERRALS. 452961 RESEARCH - THE ALS ASSOCIATION, MINNESOTA/NORTH DAKOTA/SOUTH DAKOTA CHAPTER IS AN AFFILIATE OF THE NATIONAL ALS ASSOCIATION. EACH YEAR SINCE ITS FOUNDING IN 1985, THE NATIONAL ALS ASSOCIATION HAS INCREASED ITS INVESTMENT IN RESEARCH GRANTS. SINCE THE ICE BUCKET CHALLENGE, THE ALS ASSOCIATION HAS INVESTED 122 MILLION IN THE QUEST TO UNLOCK THE MYSTERIES OF ALS. IN THE PAST 25 YEARS THE MINNESOTA/NORTH DAKOTA/SOUTH DAKOTA CHAPTER HAS HELPED RAISE MORE THAN 5.0 MILLION FOR ALS RESEARCH. THE ALS ASSOCIATION FUNDS MORE ALS RESEARCH THAN ANY OTHER ORGANIZATION AND ITS RESEARCH ENTERPRISE...(CONTINUED ON SCHEDULE O.) 123424 PUBLIC AWARENESS - EDUCATE AND INFORM THE PUBLIC ABOUT THE NATURE OF ALS THROUGH ADVOCACY, NEWSLETTERS, SOCIAL MEDIA, AND EVENTS. 1565406 true false false false false false false false false false false false false false true true false false false false false false false false true false false false false false false false false false false false false false false false false true false false false false false true 0 0 false 22 true false false false false false true true false false false false false false false false X 23 23 false false false false false false false true true false true true true true true true true true true true false MN X X X GREG MITCHELL 6126720484 1919 UNIVERSITY AVE WEST SUITE 175 ST PAUL MN 55104 X GREG MITCHELL CFO 2.00 X X 0 0 0 PHILIP ALBERT PRESIDENT 2.00 X X 0 0 0 CLAY AHRENS VICE PRESIDE 2.00 X X 0 0 0 JORDAN SING PAST PRESIDE 2.00 X X 0 0 0 JOHN ORNER TREASURER 2.00 X X 0 0 0 NANA AHWOI BOARD MEMBER 1.00 X 0 0 0 KEN BALTES BOARD MEMBER 1.00 X 0 0 0 AMY BRACHIO BOARD MEMBER 1.00 X 0 0 0 MARY JONES BOARD MEMBER 1.00 X 0 0 0 PETE KLINKHAMMER BOARD MEMBER 1.00 X 0 0 0 STEVE KRAUS BOARD MEMBER 1.00 X 0 0 0 MORGANA KOLENDA BOARD MEMBER 1.00 X 0 0 0 DAVID LAMM BOARD MEMBER 1.00 X 0 0 0 GRANT LANDER BOARD MEMBER 1.00 X 0 0 0 MARY ELLEN LEARY BOARD MEMBER 1.00 X 0 0 0 TINA LINNE BOARD MEMBER 1.00 X 0 0 0 JAN NELSON BOARD MEMBER 1.00 X 0 0 0 BRENDA OLSON BOARD MEMBER 1.00 X 0 0 0 JEREMY RICE BOARD MEMBER 1.00 X 0 0 0 SUSAN SCHUSTER BOARD MEMBER 1.00 X 0 0 0 NATHAN STAFF BOARD MEMBER 1.00 X 0 0 0 KRISTI WAITE BOARD MEMBER 1.00 X 0 0 0 DAVID WALK BOARD MEMBER 1.00 X 0 0 0 DAMILOLA ADEBLYL BOARD MEMBER 1.00 X 0 0 0 NATHEL CODY BOARD MEMBER 1.00 X 0 0 0 JULIE SMITH BOARD MEMBER 1.00 X 0 0 0 JOSEPH ST MANE BOARD MEMBER 1.00 X 0 0 0 false false false 120957 171827 292784 65715 65715 230852 46445 184407 542906 65715 468245 287340 52113 128792 13858 8402 1524 3932 29408 17829 3234 8345 18068 10954 1987 5127 104451 60252 10099 34100 5635 5635 101521 67593 9477 24451 1622 1387 1 234 102 62 11 29 RESEARCH 747126 452961 82156 212009 LOAN CLOSET EQUIPMENT 362860 362860 PROGRAM EXPENSE 237494 237494 BANK CHARGES 30014 17434 12150 430 64169 40838 6254 17077 2184573 1565406 184641 434526 276007 201367 1043908 1298311 733 33249 1730943 2999794 19518 6104152 1499678 132278 57700 550137 148347 740115 148347 X 4902841 1351331 461196 5364037 1351331 6104152 1499678 X -1641667 -262285 -2108754 X true X false false X 5916970 3700879 4155841 4662324 292784 18728798 5916970 3700879 4155841 4662324 292784 18728798 18728798 34315 51565 55564 63341 65715 270500 18999298 230852 0.98580 0.96600 X DUE TO HOME OFFICE 148347 148347 X SCHEDULE D, PAGE 3, PART X THE ASSOCIATION FOLLOWS GUIDANCE FOR ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES AND HAS EVALUATED WHETHER THEY HAVE ANY SIGNIFICANT TAX UNCERTAINTIES THAT WOULD REQUIRE RECOGNITION OR DISCLOSURE. PRIMARILY DUE TO THE EXEMPT STATUS, THE ASSOCIATION DOES NOT HAVE ANY SIGNIFICANT TAX UNCERTAINTIES THAT WOULD REQUIRE RECOGNITION OR DISCLOSURE. GALA 230852 230852 46445 230852 230852 46445 46445 184407 PP&E 2022-05-01 1730943 COST 133271855 THE ALS ASSOCIATION 1300 WILSON BLVD STE 600 ROSSLYN VA 22209 501(C)(3) false false false false SCHEDULE N THIS ORGANIZATION HAS BEEN UNIFIED WITH THE NATIONAL CHAPTER. FUTURE OPERATIONS WILL BE REPORTING ON THE CONSOLIDATED FILING. THIS CHAPTER WILL HAVE MINIMAL STAND ALONE ACTIVITY MOVING FORWARD. FORM 990, PART III FORM 990, PART III, LINE 4A: AMYOTROPHIC LATERAL SCLEROSIS (ALS), MORE COMMONLY REFERRED TO AS LOU GEHRIG'S DISEASE, IS A DEGENERATIVE DISEASE OF THE CENTRAL NERVOUS SYSTEM, CHARACTERIZED BY THE DEATH OF THE MOTOR NEURONS (SPECIFIC NERVE CELLS). ALS RESULTS IN GRADUAL, PROGRESSIVE WEAKNESS AND WASTING AWAY OF VOLUNTARY MUSCLES, OFTEN LEADING TO TOTAL PARALYSIS. THE LIFE EXPECTANCY OF A PERSON WITH ALS AVERAGES TWO TO FIVE YEARS FROM TIME OF DIAGNOSIS. WITH RECENT ADVANCES IN RESEARCH AND IMPROVED MEDICAL CARE, MANY PEOPLE WITH ALS ARE LIVING LONGER AND MORE PRODUCTIVE LIVES. HALF OF ALL THOSE AFFECTED MAY LIVE AT LEAST THREE YEARS OR MORE AFTER DIAGNOSIS. ABOUT TWENTY PERCENT LIVE FIVE YEARS OR MORE, AND UP TO TEN PERCENT WILL SURVIVE MORE THAN TEN YEARS. ALS OCCURS THROUGHOUT THE WORLD WITH NO RACIAL, ETHNIC, OR SOCIOECONOMIC BOUNDARIES. MOST PEOPLE WHO DEVELOP ALS ARE BETWEEN THE AGES OF 40 AND 70, WITH AN AVERAGE AGE OF 55 AT THE TIME OF DIAGNOSIS. HOWEVER, PEOPLE AS YOUNG AS 17 AND PEOPLE IN THEIR 90'S HAVE BEEN DIAGNOSED WITH ALS. EVERY WEEK AN AVERAGE OF TWO MINNESOTANS IS DIAGNOSED WITH ALS AND TWO SUCCUMB TO THE DISEASE. ON AVERAGE IN NORTH DAKOTA, ONE PERSON IS DIAGNOSED, AND ONE PERSON DIES FROM ALS EACH MONTH. ON AVERAGE IN SOUTH DAKOTA, ON TO TWO PEOPLE ARE DIAGNOSED AND DIE OF ALS EACH MONTH. AT ANY GIVEN TIME, THERE ARE APPROXIMATELY 450 PEOPLE LIVING WITH ALS IN MINNESOTA, NORTH DAKOTA, AND SOUTH DAKOTA. CHAPTER PROGRAMS INCLUDE: 1.HRBEK-SING COMMUNICATION AND ASSISTIVE DEVICE PROGRAM: THIS PROGRAM ASSISTS INDIVIDUALS WITH ALS WHO HAVE LOST THEIR ABILITY TO VERBALLY COMMUNICATE AND/OR WHO ARE HAVING DIFFICULTY USING A COMPUTER AND OTHER ELECTRONIC DEVICES IN THEIR HOME. THE PROGRAM LOANS DEVICES AND EQUIPMENT THAT ARE NOT COVERED BY MEDICAL INSURANCE AND ARE AVAILABLE IN THE INVENTORY. LAST FISCAL YEAR 334 PEOPLE USED THIS PROGRAM AND OVER 1,390 PIECES OF EQUIPMENT WENT IN AND OUT OF THE LOAN CLOSET. 2.JACK NORTON FAMILY RESPITE PROGRAM: THIS PROGRAM PROVIDES MUCH NEEDED RESPITE TO A FULL-TIME FAMILY CAREGIVER OF A PERSON WITH ALS. SKILLED HOMECARE PERSONNEL COME INTO THE HOME TO CARE FOR THE PERSON WITH ALS ALLOWING THE FAMILY CAREGIVER TIME TO RELAX, DO ERRANDS, KEEP APPOINTMENTS, OR VISIT WITH FRIENDS. THE CHAPTER PROVIDES UP TO 18 HOURS OF RESPITE EACH MONTH TO FAMILIES THAT QUALIFY FOR THIS PROGRAM. LAST YEAR THE CHAPTER PAID FOR 6,000 RESPITE HOURS FOR 78 FAMILIES. 3.DURABLE MEDICAL EQUIPMENT LOAN POOL: THE EQUIPMENT LOAN POOL PROVIDES DURABLE MEDICAL EQUIPMENT TO PERSONS WITH ALS TO HELP THEM MAINTAIN THEIR INDEPENDENCE AND PHYSICAL SAFETY. THE LOAN POOL HAS EQUIPMENT DONATED BY INDIVIDUALS AND THEIR FAMILIES AND IS HOUSED IN MULTIPLE LOCATIONS THROUGHOUT THE CHAPTER'S SERVICE AREA. EXAMPLES OF EQUIPMENT ARE HOSPITAL BEDS, WHEELCHAIRS, WALKERS, BATHROOM EQUIPMENT, MATTRESSES, ETC. LAST YEAR 437 PEOPLE UTILIZED THIS PROGRAM. 3,242 PIECES OF EQUIPMENT WENT IN AND OUT OF THE CLOSET DURING THIS TIME. 4.HOME SAFETY PROGRAM: THIS PROGRAM PROVIDES INDIVIDUALS WITH ALS THE SERVICES OF ALS-EXPERIENCED OT/PT'S FOR HOME EVALUATIONS, EQUIPMENT ASSESSMENT, PROPER TRANSFER TECHNIQUES, AND TRAINING IN RANGE-OF-MOTION AND STRETCHING EXERCISES TO CARE PROVIDERS OF PERSONS WITH ALS. LAST YEAR 46 PEOPLE RECEIVED HOME VISITS THROUGH THIS PROGRAM. 5.SUPPORT GROUPS: THIS YEAR, ALL OUR SUPPORT GROUPS FOR BOTH INDIVIDUALS LIVING WITH ALS AND CAREGIVERS WERE MOVED TO A VIRTUAL FORMAT ALLOWING FOLKS TO JOIN NO MATTER THEIR GEOGRAPHY. SOME OF THE SUPPORT GROUPS HAVE EDUCATIONAL SPEAKERS AND SOME BREAK INTO SMALLER GROUPS, ENSURING THE NEEDS OF ALL THOSE WHO ATTEND CAN BE ADDRESSED. 50 PEOPLE ATTENDED SUPPORT GROUPS LAST YEAR. 6.FAMILY ASSISTANCE PROGRAM: THROUGH THIS PROGRAM, A VOLUNTEER IS CONNECTED TO AN INDIVIDUAL OR FAMILY AFFECTED BY ALS TO SUPPORT THEM BY COMPLETING EVERYDAY TASKS AND PROVIDING COMPANIONSHIP. COVID-19 CHALLENGES LED TO DIMINISHED PARTICIPATION IN THIS PROGRAM LAST YEAR, BUT NUMBERS ARE EXPECTED TO APPROACH PRE-PANDEMIC LEVELS IN 2023. SUPPORT FOR FAMILIES INCLUDES YARD WORK, SNOW REMOVAL, AND GARDENING. 7.ADVOCACY: THE CHAPTER STRIVES, ON A NATIONAL AND STATE LEVEL, TO IMPROVE VARIOUS SITUATIONS WHICH PEOPLE WITH ALS AND THEIR FAMILIES FACE IN THEIR DAILY STRUGGLE WITH THE DISEASE. THESE ADVOCACY EFFORTS INCLUDE IDENTIFYING AND ADDRESSING CHALLENGES AND OPPORTUNITIES ON LEGISLATIVE AND ADMINISTRATIVE LEVELS, AND SHAPING POLICIES AND ACTIONS IN THE INTEREST OF ALL CONSTITUENTS. 8.CLINIC SERVICES: THE ASSOCIATION PARTNERS WITH LOCAL HEALTH CARE SYSTEMS TO ENSURE QUALITY OF CARE FOR THE ALS COMMUNITY BY CERTIFYING AND PROVIDING FUNDING TO ALS CERTIFIED AND RECOGNIZED CENTERS OF EXCELLENT, WHICH OFFER MULTIDISCIPLINARY CARE TO ENSURE ALL AN INDIVIDUAL'S NEEDS ARE MET IN ONE PLACE THROUGHOUT THE DISEASE PROGRESSION. SUPPORTING THE VIABILITY OF THESE CLINICS REMAINS A FOCUS IN OUR SERVICE AREA. 9.OTHER SERVICES: THE CHAPTER'S CARE SERVICES STAFF PROVIDES EDUCATION AND INFORMATION ABOUT ALS TO PERSONS WITH THE DISEASE, THEIR FAMILY, FRIENDS, AND HEALTH CARE PROFESSIONALS. THE CARE SERVICES STAFF CONSISTS OF PROFESSIONALS FROM NURSING, SOCIAL WORK, OCCUPATIONAL THERAPY, AND CHAPLAINCY. THE CARE SERVICES STAFF ARE AVAILABLE TO INDIVIDUALS WITH ALS AND THEIR FAMILY FOR CONSULTATION AND SUPPORT, ADVANCE CARE DIRECTIVES, AND TO PROVIDE RESOURCE INFORMATION. IN ADDITION, THE CHAPTER PUBLISHES A MONTHLY ELECTRONIC NEWSLETTER AND PRODUCES A WEEKLY PODCAST CONNECTING ALS. FORM 990, PART III, LINE 4B: ...IS RECOGNIZED IN THE ALS COMMUNITY FOR ITS SCOPE AND DIVERSITY. CURRENTLY, THE ASSOCIATION IS FUNDING 162 ACTIVE PROJECTS GLOBALLY. PROJECTS ARE MILESTONE DRIVEN, WHICH ENABLES THE ASSOCIATION TO REDIRECT DOLLARS WHEN THE SCIENCE DEMONSTRATES THAT ONE APPROACH IS NOT FEASIBLE, AND ANOTHER IS MORE PROMISING. FORM 990, PAGE 6, PART VI, LINE 11B THE FINANCE COMMITTEE REVIEWED THE 990 WITH THE TAX PREPARER. ANY QUESTIONS OR DISCREPANCIES ARE ADDRESSED WITH THE PREPARER BEFORE PRESENTING THE 990 TO THE GOVERNING BOARD. THE 990 IS THEN PRESENTED TO THE BOARD FOR FULL APPROVAL. FORM 990, PAGE 6, PART VI, LINE 12C ALL BOARD MEMBERS ARE REQUIRED TO SIGN THIS FORM ON AN ANNUAL BASIS, AND THE EXECUTIVE DIRECTOR OVERSEES ANY CONFLICT OF INTERESTS. FORM 990, PAGE 6, PART VI, LINE 15A A SELF-EVALUATION FORM IS FILLED OUT BY THE EXECUTIVE DIRECTOR. THE HUMAN RESOURCES COMMITTEE OR BOARD PRESIDENT OBTAINS FEEDBACK FROM THE STAFF AND THE BOARD AND THEN FILLS OUT A RESPONSE EVALUATION FORM. THE EVALUATIONS ARE THEN REVIEWED BY THE PRESIDENT AND THE EXECUTIVE DIRECTOR OF THE ORGANIZATION. THIS OCCURS ANNUALLY. ANY RAISES ARE DECIDED ON BY THE BOARD OF DIRECTORS AT THIS TIME (WITH INPUT FROM THE FINANCE COMMITTEE). FORM 990, PAGE 6, PART VI, LINE 15B FOR OTHER KEY OFFICERS AND EMPLOYEES, THE EXECUTIVE DIRECTOR REVIEW THE VP OF CARE SERVICES, THE VP OF DEVELOPMENT, AND THE DIRECTOR OF OPERATIONS ANNUALLY WITH INPUT FROM THE STAFF AND BOARD OF DIRECTORS. RAISES ARE REVIEWED ANNUALLY IN CONJUNCTION WITH THE PREPARATION OF THE BUDGET NEAR THE CALENDAR YEAR END. FORM 990, PAGE 6, PART VI, LINE 19 GOVERNING DOCUMENTS INCLUDING CONFICT OF INTEREST POLICY AND FINANCIAL STATEMENTS ARE MADE AVAILABLE UPON REQUEST. FORM 990, PART XI, LINE 9 UNIFICATION TO NATIONAL HOME OFFICE -2,108,754